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城市人群自闭症谱系障碍的专科护理计划:为自闭症谱系障碍人群提供医疗服务的个案管理模式。

Specialty Care Programme for autism spectrum disorders in an urban population: A case-management model for health care delivery in an ASD population.

机构信息

Department of Psychiatry, Hospital General Universitario Gregorio Marañón, Centro de Investigación Biomédica en Red de Salud Mental, CIBERSAM, Madrid, Spain.

出版信息

Eur Psychiatry. 2013 Feb;28(2):102-9. doi: 10.1016/j.eurpsy.2011.06.004. Epub 2011 Sep 9.

DOI:10.1016/j.eurpsy.2011.06.004
PMID:21907549
Abstract

UNLABELLED

Subjects with autism spectrum disorders (ASD) have more medical needs and more difficulties accessing health care services than the general population. Their verbal and non-verbal communication difficulties and particular behaviors, along with lack of expertise on the part of physicians and failure of the services to make adjustments, make it difficult for them to obtain an appropriate health care.

PURPOSE

To describe a model for health care delivery in an ASD population.

METHOD

Review of relevant literature and a discussion process with stakeholders leading to the design of a service to meet the specialty health needs of subjects of all ages with ASD for a region with a population of 6,000,000.

RESULTS

A service was designed centred around the concepts of case management, individualization, facilitation, accompaniment, continuous training and updating, and quality management. Five hundred and thirteen patients with ASD have been seen over a period of 18 months. The programme generated 1566 psychiatric visits and 1052 visits to other specialties (mainly Nutrition, Stomatology, Neurology, and Gastroenterology) in the same period.

CONCLUSION

Persons with ASD may benefit from adjustments of health care services in order to improve their access to adequate health care at the quality level of the rest of the population.

摘要

未加标签

自闭症谱系障碍(ASD)患者比一般人群有更多的医疗需求,也更难以获得医疗保健服务。他们在言语和非言语交流方面的困难以及特殊行为,再加上医生缺乏专业知识以及服务无法做出调整,使得他们难以获得适当的医疗保健。

目的

描述一种针对 ASD 人群的医疗保健提供模式。

方法

对相关文献进行回顾,并与利益相关者进行讨论,以设计一种服务,以满足一个拥有 600 万人口的地区所有年龄段 ASD 患者的特殊健康需求。

结果

该服务围绕个案管理、个性化、促进、陪伴、持续培训和更新以及质量管理等概念设计。在 18 个月的时间里,共接待了 513 名 ASD 患者。同期,该项目共产生了 1566 次精神科就诊和 1052 次其他专科就诊(主要是营养、口腔医学、神经病学和胃肠病学)。

结论

为了提高 ASD 患者获得适当医疗保健的机会,并达到与其他人群相同的医疗保健质量水平,他们可能需要对医疗保健服务进行调整。

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