School of Social Science, The University of Queensland, Brisbane, Australia.
Qual Health Res. 2012 Feb;22(2):226-37. doi: 10.1177/1049732311421181. Epub 2011 Sep 9.
Euthanasia/assisted dying, the desire to hasten death, and religious supportive care at the end of life are controversial issues that have been heavily debated within the academic and medical communities. Little research has been done on hospice patients' views, despite hospices being political spaces, espousing a range of perspectives on assisted dying, religiosity, and "good deaths." In this article I document the presence, articulation, and significance of these issues as perceived and experienced by 20 hospice inpatients in the last 4 weeks of their lives. Key themes to emerge included polarization in desire for hastened death and assisted dying in the hospice; the hospice as a morally bound space situated within particular notions of "dying well"; and the divisive character of religion as part of formalized hospice care. Theoretically, the participants' perspectives on euthanasia/assisted dying and religiosity in the hospice provide a means of unpacking and revealing the moral economy of modern dying practices and the institutional governance and production of "timely deaths."
安乐死/协助自杀、加速死亡的愿望以及生命末期的宗教支持性护理是学术界和医学界内部激烈争论的问题。尽管临终关怀机构是宣扬协助死亡、宗教信仰和“善终”等各种观点的政治空间，但很少有研究关注临终关怀患者的观点。在本文中，我记录了 20 名临终关怀住院患者在生命的最后 4 周内所感知和经历的这些问题的存在、表达和意义。出现的主要主题包括：临终关怀中对加速死亡和协助自杀的愿望存在两极分化；临终关怀作为一个道德约束的空间，位于特定的“善终”观念中；宗教作为正规临终关怀护理的一部分具有分裂性。从理论上讲，参与者对临终关怀中的安乐死/协助自杀和宗教的看法为剖析和揭示现代死亡实践的道德经济以及“及时死亡”的机构治理和生产提供了一种手段。
