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电子家庭健康史应用的基于数据的考量因素。

Data-based considerations for electronic family health history applications.

作者信息

Peace Jane, Valdez Rupa Sheth, Lutz Kristin F

机构信息

School of Nursing, Duke University, Durham, NC 27710, USA.

出版信息

Comput Inform Nurs. 2012 Jan;30(1):37-45. doi: 10.1097/NCN.0b013e31822b865b.

DOI:10.1097/NCN.0b013e31822b865b
PMID:21915045
Abstract

Family health history contains important information about the genetic and environmental factors that contribute to patterns of health and illness in families. Applications for collecting, managing, and analyzing family health history could be improved if their design were informed by an understanding of how consumers think about and report family health history. This article presents a descriptive analysis of themes from family health history interviews that have implications for development, selection, and use of family health history tools. Important themes included ways in which family is defined, including nonbiological family members and pets; ideas about health and disease, including degree of exposure and individual perceptions; and barriers to reporting family health history, including large biological families and uncertainty. Some themes identified (eg, uncertainty) have been recognized previously and continue to be important considerations. Other themes identified, such as perceptions about severity of illness or conditions and causal relationships, are newly recognized and may have implications for nurses and other providers designing, selecting, and using family health history applications.

摘要

家族健康史包含有关遗传和环境因素的重要信息,这些因素会影响家族中的健康与疾病模式。如果在设计收集、管理和分析家族健康史的应用程序时,能够基于对消费者如何思考和报告家族健康史的理解,那么这些应用程序将会得到改进。本文对家族健康史访谈中的主题进行了描述性分析,这些主题对家族健康史工具的开发、选择和使用具有启示意义。重要主题包括家族的定义方式,包括非亲生家庭成员和宠物;关于健康和疾病的观念,包括接触程度和个人认知;以及报告家族健康史的障碍,包括庞大的生物学家族和不确定性。一些已确定的主题(如不确定性)此前已得到认可,并且仍然是重要的考虑因素。其他已确定的主题,如对疾病或状况严重程度的认知以及因果关系,则是新发现的,可能会对设计、选择和使用家族健康史应用程序的护士及其他医疗服务提供者产生影响。

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Data-based considerations for electronic family health history applications.电子家庭健康史应用的基于数据的考量因素。
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J Am Med Inform Assoc. 2015 Apr;22(e1):e67-80. doi: 10.1136/amiajnl-2014-003092. Epub 2014 Oct 21.
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Will family health history tools work for complex families? Scenario-based testing of a web-based consumer application.家庭健康史工具对复杂家庭有用吗?基于网络的消费者应用程序的情景测试。
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