Tufts Medical Center, Boston, MA, USA.
J Atten Disord. 2012 Nov;16(8):675-84. doi: 10.1177/1087054711413077. Epub 2011 Oct 5.
To examine components of family-centered care in families' stories about treatment decision making for their child with ADHD.
Twenty-eight families participated in qualitative interviews that addressed families' perspectives on (a) the treatment decision-making process, (b) the cause and impact of their child's symptoms, and (c) treatment goals and preferences.
The majority of families preferred to be primary or shared decision makers regarding treatment decisions. Families' perspectives on the cause of the child's symptoms varied and often were not consistent with a biomedical framework. Families described multiple areas of impairment on child, family relationships, and family functioning. Perspectives toward evidence-based treatments were mixed, with families also expressing interest in and pursuing interventions not delineated in current treatment guidelines.
These findings reinforce the importance of eliciting families' perspectives and involving these important stakeholders in shared decision making as critical components of family-centered care for children with ADHD.
探讨 ADHD 患儿家庭治疗决策过程中家庭中心照护的组成部分。
28 个家庭参与了定性访谈，内容涉及家庭对以下方面的看法：（a）治疗决策过程；（b）孩子症状的起因和影响；（c）治疗目标和偏好。
大多数家庭希望在治疗决策方面成为主要或共同决策者。家庭对孩子症状起因的看法各不相同，而且往往与生物医学框架不一致。家庭描述了孩子、家庭关系和家庭功能等多个方面的受损。对循证治疗的看法不一，家庭也对当前治疗指南中未明确规定的干预措施表示有兴趣并加以探索。
这些发现强调了了解家庭观点并让这些重要利益相关者参与共同决策的重要性，这是 ADHD 儿童家庭中心照护的关键组成部分。
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