西班牙裔和非西班牙裔白种人患有脊柱裂的儿童的母亲和父亲的个体调整、父母功能和感知社会支持。
Individual adjustment, parental functioning, and perceived social support in Hispanic and non-Hispanic white mothers and fathers of children with spina bifida.
机构信息
Department of Psychology, Loyola University Chicago, 1032 W. Sheridan Rd., Chicago, IL 60660, USA.
出版信息
J Pediatr Psychol. 2012 Aug;37(7):769-78. doi: 10.1093/jpepsy/jsr083. Epub 2011 Oct 11.
Abstract
OBJECTIVE
To compare Hispanic and non-Hispanic White mothers and fathers of children with spina bifida on measures of individual adjustment, parental functioning, and perceived social support.
METHOD
Mothers (29 Hispanic, 79 non-Hispanic white) and fathers (26 Hispanic, 68 non-Hispanic white) completed questionnaires regarding psychological distress, parental functioning, and perceived social support.
RESULTS
Mothers and fathers reported similar individual adjustment across groups. Hispanic mothers reported lower levels of parenting satisfaction, competence as a parent, and social support, as well as higher perceptions of child vulnerability. Hispanic fathers reported lower levels of parenting satisfaction and higher perceptions of child vulnerability. Effect sizes were reduced when socioeconomic status was included as a covariate.
CONCLUSIONS
Hispanic parents, particularly mothers, are at risk for lower feelings of satisfaction and competence as parents. More research is needed to understand cultural factors related to these differences.
摘要
目的
比较患有脊柱裂的儿童的西班牙裔和非西班牙裔白人母亲和父亲在个体适应、父母功能和感知社会支持方面的情况。
方法
母亲（29 名西班牙裔，79 名非西班牙裔白人）和父亲（26 名西班牙裔，68 名非西班牙裔白人）完成了关于心理困扰、父母功能和感知社会支持的问卷。
结果
母亲和父亲在各群体之间报告了相似的个体适应情况。西班牙裔母亲报告的育儿满意度、作为父母的能力和社会支持水平较低，对孩子脆弱性的看法较高。西班牙裔父亲报告的育儿满意度较低，对孩子脆弱性的看法较高。当将社会经济地位作为协变量纳入时，效应大小会降低。
结论
西班牙裔父母，尤其是母亲，作为父母的满意度和能力较低。需要进一步研究了解与这些差异相关的文化因素。
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本文引用的文献
1
Menarcheal status and parent-child relations in families of seventh-grade girls.初潮状态与七年级女生家庭亲子关系
J Youth Adolesc. 1985 Aug;14(4):301-16. doi: 10.1007/BF02089236.
2
Friendships of children and adolescents with spina bifida: social adjustment, social performance, and social skills.儿童和青少年的脊髓裂友谊：社会适应、社会表现和社会技能。
J Pediatr Psychol. 2012 Mar;37(2):220-31. doi: 10.1093/jpepsy/jsr075. Epub 2011 Sep 19.
3
Cultural considerations in the care of children with spina bifida.关注脊柱裂患儿的文化差异。
Pediatr Clin North Am. 2010 Aug;57(4):1027-40. doi: 10.1016/j.pcl.2010.07.019.
4
Psychosocial and family functioning in spina bifida.脊柱裂患者的心理社会及家庭功能
Dev Disabil Res Rev. 2010;16(1):40-6. doi: 10.1002/ddrr.90.
5
Associations of ethnicity and SES with IQ and achievement in spina bifida meningomyelocele.种族和社会经济地位与脊柱裂脑脊膜膨出的智商和成绩的关系。
J Pediatr Psychol. 2010 Oct;35(9):927-36. doi: 10.1093/jpepsy/jsq001. Epub 2010 Feb 11.
6
A power primer.强力底漆。
Psychol Bull. 1992 Jul;112(1):155-9. doi: 10.1037//0033-2909.112.1.155.
7
Adherence and glycemic control among Hispanic youth with type 1 diabetes: role of family involvement and acculturation.1 型糖尿病西班牙裔青少年的依从性和血糖控制：家庭参与和文化适应的作用。
J Pediatr Psychol. 2010 Mar;35(2):156-66. doi: 10.1093/jpepsy/jsp045. Epub 2009 Jun 2.
8
Trends in the postfortification prevalence of spina bifida and anencephaly in the United States.美国脊柱裂和无脑儿强化预防后的流行趋势。
Birth Defects Res A Clin Mol Teratol. 2008 Jul;82(7):527-32. doi: 10.1002/bdra.20468.
9
Unmet mental health need and access to services for children with special health care needs and their families.有特殊医疗需求儿童及其家庭未满足的心理健康需求与服务可及性。
Ambul Pediatr. 2007 Nov-Dec;7(6):431-8. doi: 10.1016/j.ambp.2007.08.001.
10
The relationship of parental overprotection, perceived child vulnerability, and parenting stress to uncertainty in youth with chronic illness.慢性病青少年中父母过度保护、感知到的孩子脆弱性以及育儿压力与不确定性之间的关系。
J Pediatr Psychol. 2007 Sep;32(8):973-82. doi: 10.1093/jpepsy/jsm044. Epub 2007 Jul 18.
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