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“当他们看到轮椅,他们甚至都没有看到我”-肯尼亚残疾污名和歧视经历的形成因素。

"When They See a Wheelchair, They've Not Even Seen Me"-Factors Shaping the Experience of Disability Stigma and Discrimination in Kenya.

机构信息

UCL Interaction Centre & Global Disability Innovation Hub, University College London, London WC1E 6BT, UK.

Policy, Influencing and Research, Leonard Cheshire, London SW8 1RL, UK.

出版信息

Int J Environ Res Public Health. 2021 Apr 17;18(8):4272. doi: 10.3390/ijerph18084272.

Abstract

Disability stigma in many low- and middle-income countries represents one of the most pervasive barriers preventing people with disabilities from accessing equal rights and opportunities, including the uptake of available assistive technology (AT). Previous studies have rarely examined how disability stigma may be shaped through factors endemic to social interactions, including how the use of assistive technology itself may precipitate or alleviate disability stigma. Through two strands of work, we address this gap. Via a series of focus groups with Kenyans without disabilities (Study 1) and secondary data analysis of consultations with Kenyans with disabilities and their allies (Study 2), we identify shared and divergent understandings of what shapes disability stigma and discrimination. Specifically, Kenyans with and without disabilities were cognizant of how religious/spiritual interpretations of disability, conceptions of impairments as "different" from the norm, and social stereotypes about (dis)ability shaped the experience of stigma and discrimination. Moreover, both groups highlighted assistive technology as an influential factor that served to identify or "mark" someone as having a disability. However, whereas participants without disabilities saw assistive technology purely as an enabler to overcome stigma, participants with disabilities also noted that, in some cases, use of assistive technologies would attract stigma from others.

摘要

在许多低收入和中等收入国家,残疾污名是阻碍残疾人获得平等权利和机会的最普遍障碍之一,包括获得现有辅助技术(AT)的机会。以前的研究很少探讨残疾污名如何通过社会互动中特有的因素形成,包括辅助技术本身的使用如何引发或减轻残疾污名。我们通过两方面的工作来解决这一差距。通过对肯尼亚无残疾者的一系列焦点小组讨论(研究 1)和对肯尼亚残疾者及其盟友咨询的二次数据分析(研究 2),我们确定了形成残疾污名和歧视的共同和不同的理解。具体来说,肯尼亚有残疾和无残疾者都意识到残疾的宗教/精神解释、对与规范不同的损伤的概念,以及关于(残疾)的社会刻板印象如何塑造污名和歧视的经历。此外,两组参与者都强调辅助技术是一个有影响力的因素,可以用来识别或“标记”某人有残疾。然而,无残疾者将辅助技术纯粹视为克服污名的一种手段,而残疾者则指出,在某些情况下,使用辅助技术会引起他人的污名。

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