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曼尼托巴省远程医疗与现场临床遗传学预约的趋势:一项比较研究。

Trends in telehealth versus on-site clinical genetics appointments in Manitoba: a comparative study.

作者信息

Elliott Alison M, Mhanni Aizeddin A, Marles Sandra L, Greenberg Cheryl R, Chudley Albert E, Nyhof Gwendolyne C, Chodirker Bernard N

机构信息

WRHA Program of Genetics and Metabolism, University of Manitoba, Winnipeg, MB, Canada.

出版信息

J Genet Couns. 2012 Apr;21(2):337-44. doi: 10.1007/s10897-011-9406-5. Epub 2011 Oct 15.

DOI:10.1007/s10897-011-9406-5
PMID:21997346
Abstract

Telehealth involves the use of information and communications technology to deliver health services to patients over distance. Canada is well suited to benefit from telehealth since many individuals live in remote, rural and isolated locations. Manitoba is the easternmost prairie province and MBTelehealth is an active Canadian program that currently has 105 sites in 73 communities. Although studies of patient satisfaction comparing telehealth to on-site clinical visits have been conducted, a comparative study of the types of genetics patients seen via these two modalities has not been performed previously. In this study we: (1) examined the uptake of telehealth in Genetics in Manitoba; (2) contrasted telehealth usage in Genetics with other clinical programs; and (3) performed a comparative study of the types of Genetics referrals seen in 2008 on-site versus via telehealth. Results indicate the uptake of telehealth is increasing and has made genetics outreach clinics unnecessary. The Program of Genetics and Metabolism is consistently one of the top ten utilizers of telehealth within the province. With respect to discipline, chi square analysis revealed the trends were not significantly different for on-site and telehealth encounters, with prenatal referrals being the most common and Hereditary Breast and Ovarian Cancer referrals being the least common. Referrals within each discipline varied depending on the need for fetal assessment and physical examination. Telehealth was utilized regularly for test results sessions across all disciplines.

摘要

远程医疗涉及利用信息和通信技术为患者远程提供医疗服务。加拿大很适合从远程医疗中受益,因为许多人生活在偏远、乡村和孤立地区。曼尼托巴省是最东部的草原省份,曼尼托巴省远程医疗是加拿大一个活跃的项目,目前在73个社区有105个站点。虽然已经进行了将远程医疗与现场临床就诊进行患者满意度比较的研究,但此前尚未对通过这两种方式就诊的遗传学患者类型进行比较研究。在本研究中,我们:(1) 调查了曼尼托巴省遗传学领域对远程医疗的接受情况;(2) 将遗传学领域的远程医疗使用情况与其他临床项目进行对比;(3) 对2008年现场就诊与通过远程医疗就诊的遗传学转诊类型进行了比较研究。结果表明,远程医疗的接受度在增加,使得遗传学外展诊所不再必要。遗传学与代谢项目一直是该省远程医疗的十大使用项目之一。就学科而言,卡方分析显示,现场就诊和远程医疗就诊的趋势没有显著差异,产前转诊最为常见,遗传性乳腺癌和卵巢癌转诊最不常见。每个学科内的转诊情况因胎儿评估和体格检查的需求而异。所有学科的检查结果会诊都经常使用远程医疗。

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本文引用的文献

1
Using telehealth for assessment of fetal alcohol spectrum disorder: the experience of two Canadian rural and remote communities.利用远程医疗评估胎儿酒精谱系障碍:两个加拿大农村和偏远社区的经验。
Telemed J E Health. 2010 Oct;16(8):872-7. doi: 10.1089/tmj.2010.0070. Epub 2010 Oct 6.
2
Genetic counseling in a busy pediatric metabolic practice.繁忙儿科代谢门诊中的遗传咨询
J Genet Couns. 2011 Feb;20(1):20-2. doi: 10.1007/s10897-010-9324-y. Epub 2010 Sep 14.
3
A survey of the state of telemedicine in Western Australia.西澳大利亚州远程医疗状况调查。
基因组咨询服务:一项旨在优化不列颠哥伦比亚省全基因组测序患者选择的临床服务。
Mol Genet Genomic Med. 2018 May 30;6(4):592-600. doi: 10.1002/mgg3.410.
4
Utilizing Remote Real-Time Videoconferencing to Expand Access to Cancer Genetic Services in Community Practices: A Multicenter Feasibility Study.利用远程实时视频会议扩大社区医疗机构癌症基因检测服务的可及性:一项多中心可行性研究
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5
Online genetic counseling from the providers' perspective: counselors' evaluations and a time and cost analysis.从提供者角度看在线遗传咨询:咨询师的评估以及时间和成本分析
Eur J Hum Genet. 2016 Aug;24(9):1255-61. doi: 10.1038/ejhg.2015.283. Epub 2016 Jan 20.
6
Telemedicine uptake among Genetics Professionals in Europe: room for expansion.欧洲遗传学专业人员对远程医疗的采用情况:仍有扩展空间。
Eur J Hum Genet. 2016 Feb;24(2):157-63. doi: 10.1038/ejhg.2015.83. Epub 2015 Apr 22.
7
Evaluation of a clinical genetics service--a quality initiative.临床遗传学服务评估——一项质量改进举措。
J Genet Couns. 2014 Oct;23(5):881-9. doi: 10.1007/s10897-014-9713-8. Epub 2014 Mar 21.
8
Acceptability of telemedicine and other cancer genetic counseling models of service delivery in geographically remote settings.远程医疗及其他癌症遗传咨询服务模式在地理偏远地区的可接受性。
J Genet Couns. 2014 Apr;23(2):221-8. doi: 10.1007/s10897-013-9652-9. Epub 2013 Sep 8.
J Telemed Telecare. 2010;16(4):176-80. doi: 10.1258/jtt.2010.004003.
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Women's experience of telehealth cancer genetic counseling.女性对远程医疗癌症遗传咨询的体验。
J Genet Couns. 2010 Oct;19(5):463-72. doi: 10.1007/s10897-010-9301-5. Epub 2010 Apr 22.
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The virtual consultation: practitioners' experiences of genetic counseling by videoconferencing in Australia.远程视频咨询:澳大利亚从业者进行遗传咨询的实践经验
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The evaluation of the referral reasons of patients at a tertiary pediatric genetic center in Izmir, Turkey.对土耳其伊兹密尔一家三级儿科遗传中心患者转诊原因的评估。
Genet Test Mol Biomarkers. 2009 Apr;13(2):163-6. doi: 10.1089/gtmb.2008.0074.
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J Genet Couns. 2006 Jun;15(3):199-205. doi: 10.1007/s10897-006-9020-0.
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