Department of Medical Oncology, Prince of Wales Hospital, Randwick, New South Wales 2031, Australia.
Telemed J E Health. 2010 Apr;16(3):350-7. doi: 10.1089/tmj.2009.0108.
Videoconferencing for clinical genetics services, or telegenetics, is becoming an increasingly utilized method of delivering genetic counseling to rural areas; however, there has been little qualitative exploration of the practitioner's experience, particularly for hereditary breast/ovarian cancer counseling.
Semistructured interviews were conducted with genetic practitioners (n=15) delivering telegenetics services in New South Wales, Australia. Interviews explored experiences, perceived aims of the service, satisfaction, and the advantages and disadvantages of the technology. Interviews were audiotaped, transcribed, and thematically analyzed.
All practitioners were highly satisfied with telegenetics. They perceived the advantages of videoconferencing as primarily increased efficiency and convenience for genetic clinicians, minimized travel for the patient, reduced costs, and increased access to rural areas. Disadvantages included the inhibition of rapport building between genetic clinician and patient and the difficulty in detecting nonverbal cues. Telegenetics was seen as a structured interaction that allowed less time for emotional exploration than a traditional face-to-face consultation. Technical disadvantages involved visual resolution, connection speed, and interruptions to voice transmission.
Practitioners were satisfied with telegenetics and perceived the advantages as outweighing the disadvantages.
远程遗传学服务(视频会议遗传学服务,简称远程遗传学)正逐渐成为向农村地区提供遗传咨询的一种常用方法;然而,对于遗传性乳腺癌/卵巢癌咨询服务,几乎没有对从业者经验的定性探索。
对在澳大利亚新南威尔士州提供远程遗传学服务的遗传从业者(n=15)进行半结构化访谈。访谈内容涉及经验、服务的预期目标、满意度,以及技术的优势和劣势。访谈内容进行了录音、转录和主题分析。
所有从业者对远程遗传学都非常满意。他们认为视频会议的优势主要在于提高了遗传临床医生的效率和便利性,减少了患者的出行,降低了成本,并增加了农村地区的服务可及性。缺点包括抑制了遗传临床医生和患者之间的融洽关系,以及难以察觉非言语线索。远程遗传学被视为一种结构化的互动,比传统的面对面咨询有更少的情感探索时间。技术方面的缺点包括视觉分辨率、连接速度和语音传输中断。
从业者对远程遗传学感到满意,并认为其优势超过了劣势。