School of Nursing & Midwifery, University of Newcastle, Ourimbah, NSW, Australia.
Int J Older People Nurs. 2011 Sep;6(3):176-86. doi: 10.1111/j.1748-3743.2009.00201.x.
The aim of this study is to report the findings of a case study that explored the phenomenon of advance care planning and advanced care directives in residential care settings in Australia. In particular, this study focuses on the experiences of residents' and family members'.
Understanding the phenomenon of advance care planning and advanced care directives is vital to end of life decision making. There are few studies that report the experiences of older people and family members in relation to advance care planning and advanced care directives.
A case-study research was conducted and data was collected over 7 months involving participant observation, field notes, semi-structured interviews and document analysis.
The participants' early experiences with advance care planning were expressed in unpleasant, hostile and negative ways. However, those emotions and concerns were transformed to more stable, amenable and positive attitudes and feelings as issues were resolved. The factors that enhanced or inhibited the transition were described.
Older people and families view the end of life with broader psychosocial and spiritual meanings shaped by a lifetime of experiences. Advance care planning led to a different level of appreciation of personal entity and transcendence. However, advance care planning demands concerted action and support by everyone involved.
本研究旨在报告一项案例研究的结果，该研究探讨了澳大利亚养老院中预先护理计划和高级护理指令的现象。具体来说，本研究侧重于居民和家庭成员的经验。
了解预先护理计划和高级护理指令的现象对临终决策至关重要。很少有研究报告老年人和家庭成员在预先护理计划和高级护理指令方面的经验。
进行了案例研究，在 7 个月的时间内收集了参与者观察、现场记录、半结构化访谈和文件分析的数据。
参与者对预先护理计划的早期经验以不愉快、敌对和消极的方式表达。然而，随着问题的解决，这些情绪和担忧转变为更加稳定、可接受和积极的态度和感觉。描述了增强或抑制过渡的因素。
老年人和家庭以一生经历塑造的更广泛的心理社会和精神意义来看待生命的尽头。预先护理计划导致了对个人实体和超越的不同程度的欣赏。然而，预先护理计划需要所有相关人员的一致行动和支持。
