Menzies School of Health Research, Charles Darwin University, Darwin, NT, Australia.
School of Nursing, Faculty of Health, Charles Darwin University, Darwin, NT, Australia.
Am J Hosp Palliat Care. 2024 Jun;41(7):814-823. doi: 10.1177/10499091231200366. Epub 2023 Sep 1.
Current literature indicates low uptake of advance care planning (ACP) among the Chinese-speaking community in Australia. To increase the uptake of ACP among the Chinese-speaking community, a better understanding of their attitudes and perceptions on end-of-life (EOL) matters, and ACP is required.
This study aimed to identify significant events and social and cultural factors that influence participants' values and characterize the attitudes and perceptions towards ACP among older Chinese-speaking Australians.
A qualitative study explored participants' experiences through semi-structured one-to-one interviews. The interviews were conducted in Mandarin, Cantonese or English, then translated and transcribed into English. The transcripts were coded and analysed thematically.
Twenty participants were recruited (14 female, six male). Participants typically reported a preference to make health-related decisions autonomously. Their perspectives were grounded in past experiences of illnesses and EOL decision-making of loved ones, personal values, and perceived needs. Family dynamics and intimacy of relationships appeared to influence the role and responsibility of family members in EOL decision-making and ACP. Most participants perceived the need to engage in ACP only when encountering significant health changes or higher care needs.
Healthcare professionals should initiate ACP discussion using culturally appropriate communication with consideration of personal values, past experiences and family dynamics. Efforts should be invested in raising public awareness of ACP within the Chinese-Australian community.
目前的文献表明，澳大利亚华裔社区对预先医疗指示（ACP）的接受程度较低。为了提高华裔社区对 ACP 的接受程度，需要更好地了解他们对临终（EOL）事务的态度和看法，以及 ACP。
本研究旨在确定影响参与者价值观的重大事件和社会文化因素，并描述澳大利亚华裔老年人对 ACP 的态度和看法。
一项定性研究通过半结构化的一对一访谈探索参与者的经验。访谈以普通话、粤语或英语进行，然后翻译成英文并转录。对转录本进行编码和主题分析。
招募了 20 名参与者（14 名女性，6 名男性）。参与者通常表示希望自主做出与健康相关的决定。他们的观点基于过去的疾病经历和亲人的 EOL 决策、个人价值观和感知需求。家庭动态和关系的亲密程度似乎影响了家庭成员在 EOL 决策和 ACP 中的角色和责任。大多数参与者认为只有在遇到重大健康变化或更高的护理需求时才需要进行 ACP。
医疗保健专业人员应使用文化上适当的沟通方式，考虑个人价值观、过去的经验和家庭动态，启动 ACP 讨论。应努力提高华裔澳大利亚社区对 ACP 的公众意识。
