Aalesund University College, Norway.
J Adv Nurs. 2012 Aug;68(8):1716-25. doi: 10.1111/j.1365-2648.2011.05854.x. Epub 2011 Oct 17.
This paper is a report of a study conducted to explore how the family members of older people who will undergo haemodialysis treatment for the rest of their lives perceive participation.
The rights of families to participate in treatment and health care are supported by international law, and by national law in Norway since 1999.
This study, which employed an explorative qualitative approach, was carried out in Norway in 2008. Data were derived from transcribed interviews with seven family members underwent critical discourse analysis.
Three discourse practices about the next of kin perception of participation were found: (1) to care and take control, (2) to struggle for involvement, and (3) to be forgotten and powerless. The next of kin said that they had no dialogue with the healthcare team, and some fought to be included in the decision-making process.
The dominant part of the discourse as expressed by the next of kin seems to be a paternalistic ideology. Thus, finding ways to enable the next of kin to participate in the decision-making process seems to be a major challenge for the healthcare team in the dialysis units.
本文是一项研究报告，旨在探讨那些将终身接受血液透析治疗的老年人的家庭成员对参与治疗的看法。
国际法律以及挪威自 1999 年以来的国家法律都支持家庭成员参与治疗和保健的权利。
本研究于 2008 年在挪威进行，采用探索性定性方法。数据来自于对 7 名家庭成员的访谈记录，并进行了批判性话语分析。
研究发现了三种关于家庭成员对参与的看法的话语实践：（1）关心和控制，（2）争取参与，以及（3）被遗忘和无力。家庭成员表示他们与医疗团队没有对话，有些人则努力争取参与决策过程。
从家庭成员的话语中可以看出，主导部分似乎是一种家长式的意识形态。因此，为家庭成员参与决策过程寻找途径似乎是透析单位医疗团队面临的一项重大挑战。
