当肾脏移植不可行时：血液透析患者及其伴侣的经历——一项定性研究。
When kidney transplantation is not an option: Haemodialysis patients' and partners' experiences-A qualitative study.
作者信息
Frandsen Christina Egmose, Pedersen Erik Bo, Agerskov Hanne
机构信息
Department of Nephrology Odense University Hospital Odense C Denmark.
Department of Clinical Research University of Southern Denmark Odense C Denmark.
出版信息
Nurs Open. 2020 Apr 2;7(4):1110-1117. doi: 10.1002/nop2.487. eCollection 2020 Jul.
AIM
To investigate the experiences and perspectives of everyday life among patients on lifelong haemodialysis and their partners.
DESIGN
A qualitative exploratory study with a phenomenological-hermeneutic approach.
METHOD
Data were collected through individual interviews. In total, five patients in haemodialysis and their partners were included in the study. Data were analysed with inspiration from Ricoeur's theory around narratives and interpretation on three levels: naïve reading, structural analysis and critical interpretation and discussion. Data was collected between February 2018-June 2019.
RESULTS
Limitations caused by the disease and time-consuming treatment influenced daily life. In particular, the partners needed to have time on their own. Knowledge about the disease and participation in treatment were significant to both patients and partners. There were considerations about illness progression. Relationships to their social networks and healthcare professionals were a significant and important part of daily life for both parties.
目的
调查长期接受血液透析的患者及其伴侣的日常生活经历和观点。
设计
采用现象学-诠释学方法的定性探索性研究。
方法
通过个人访谈收集数据。该研究共纳入了五名接受血液透析的患者及其伴侣。数据依据里科尔关于叙事和解释的理论，分三个层面进行分析：朴素阅读、结构分析以及批判性解释与讨论。数据收集时间为2018年2月至2019年6月。
结果
疾病造成的限制和耗时的治疗影响了日常生活。特别是，伴侣需要有属于自己的时间。对疾病的了解和参与治疗对患者及其伴侣都很重要。存在对疾病进展的考量。他们与社交网络及医护人员的关系是双方日常生活的重要组成部分。
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