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患者是否希望掌控自己的医疗保健?对测量方法、研究结果和研究问题的回顾。

Do Patients Want Control over their Own Health Care? A Review of Measures, Findings, and Research Issues.

机构信息

Virginia Commonwealth University, USA.

出版信息

J Health Psychol. 2001 Mar;6(2):191-203. doi: 10.1177/135910530100600208.

DOI:10.1177/135910530100600208
PMID:22049321
Abstract

Across a wide variety of medical settings, patients report that they want detailed information about their condition and their treatment whereas stated desire for input into decision making is skewed more in the direction of physician-only or at least collaborative decision-making. These results, along with the contextual and individual difference factors associated with increased willingness to relinquish control (lower educational level, more serious illness, increasing age), indicate that patients want to assume control if they feel it will be beneficial to them to do so. The findings, however, are based largely on the relationship of patients' mean scores to arbitrarily determined scale midpoints on measures with little or no criterion-related validity. These measures also show insufficient overlap with better validated measures of desire for health care control, which indicate more normally distributed scores and a broader range of individual differences among respondents. Findings are discussed in terms of the need for further research on the structure (dimensionality) and stability of the construct desire for health care control and issues involved in conducting needed criterion-related validational work.

摘要

在各种医疗环境中,患者报告说他们希望获得有关自身状况和治疗的详细信息,而他们对参与决策的期望则更多地偏向于医生主导或至少是合作决策。这些结果,以及与增加放弃控制意愿相关的背景和个体差异因素(教育程度较低、病情更严重、年龄增长)表明,如果患者认为这样做对他们有益,他们希望掌控局面。然而,这些发现主要基于患者的平均得分与具有很少或没有准则相关有效性的措施的任意确定量表中点之间的关系。这些措施与更有效的医疗保健控制意愿衡量标准的重叠程度也不够,后者显示出更正态分布的得分和受访者之间更广泛的个体差异。研究结果从需要进一步研究医疗保健控制意愿这一结构(维度)和稳定性,以及开展必要的准则相关验证工作所涉及的问题等方面进行了讨论。

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