Prieto Rodríguez M Ángeles, March Cerdá Joan Carles, Martín Barato Amelia, Escudero Carretero María, López Doblas Manuela, Luque Martín Nuria
CIBER de Epidemiología y Salud Pública (CIBERESP), España; Escuela Andaluza de Salud Pública, Granada, España; Instituto de Investigación Biosanitaria de Granada, Granada, España.
Escuela Andaluza de Salud Pública, Granada, España; Instituto de Investigación Biosanitaria de Granada, Granada, España.
Gac Sanit. 2022 Mar-Apr;36(2):139-145. doi: 10.1016/j.gaceta.2020.11.001. Epub 2020 Nov 21.
To understand the consequences of the COVID-19 pandemic lockdown on the self-care of people living with chronic diseases and on their self-perceived health, and to identify factors that may influence the management of their disease in emergency situations.
A qualitative study conducted in 2020 (March and April) in Andalusia (Spain) during the COVID-19 pandemic lockdown, through virtual focus groups, using the Zoom telematics tool. Three virtual focus groups were conducted, including 34 patients from Andalusia with different chronic conditions such as arthritis, diabetes, cardiovascular disease, inflammatory bowel disease, breast cancer and fibromyalgia.
People with chronic diseases reported effects of the lockdown in relation to their emotional experience, their coping resources, the information they received, the difficulties to manage self-care, and the contact or access to health services. They also suggested some lessons learned for the future. The need for more and better information, patient training, involving patient associations, and improving telematics access to health services are the main areas for improvement to minimize the impact of future quarantines on the self-care and the health of people with chronic diseases.
Besides the risk of contracting COVID-19, the difficulties encountered by people with chronic diseases during the lockdown include interferences in the self-care and the health care received. Health crisis situations demand more information, training for patients and improvements in the health services accessibility for patients with chronic conditions.
了解2019冠状病毒病疫情封锁对慢性病患者自我护理及其自我感知健康状况的影响，并确定在紧急情况下可能影响其疾病管理的因素。
2020年（3月和4月）在西班牙安达卢西亚2019冠状病毒病疫情封锁期间，通过使用Zoom远程信息处理工具的虚拟焦点小组进行了一项定性研究。开展了3个虚拟焦点小组，包括来自安达卢西亚的34名患有不同慢性病的患者，如关节炎、糖尿病、心血管疾病、炎症性肠病、乳腺癌和纤维肌痛。
慢性病患者报告了封锁对其情感体验、应对资源、所获信息、自我护理管理困难以及与医疗服务的接触或获取方面的影响。他们还提出了一些未来吸取的经验教训。需要更多更好的信息、患者培训、让患者协会参与以及改善远程信息处理方式以获取医疗服务，这是主要的改进领域，以尽量减少未来隔离对慢性病患者自我护理和健康的影响。
除感染2019冠状病毒病的风险外，慢性病患者在封锁期间遇到的困难包括自我护理和所接受医疗保健受到干扰。健康危机情况需要更多信息、对患者的培训以及改善慢性病患者获取医疗服务的机会。
