Department of Palliative Care Policy & Rehabilitation, Cicely Saunders Institute, King's College London, London, UK.
Support Care Cancer. 2012 Sep;20(9):1975-82. doi: 10.1007/s00520-011-1300-z. Epub 2011 Nov 10.
Tailored and specific interventions for informal caregivers in palliative care are rare. We aimed to generate evidence to inform a subsequent appropriate intervention based on caregivers' experiences.
Single, semi-structured qualitative interviews were undertaken with 20 informal cancer caregivers of home cancer palliative care.
Carers reported the need to be prepared for their caring role, to be visible to professionals, to receive clear and specific information about the patient's condition, and to be emotionally supported. They described challenges as uncertainty, distress at witnessing disease progression and the daily struggle with financial issues, personal time, own health and sleep problems.
Considering the time pressures and restricted caregiver time, the intervention should be brief and should aim to enhance their visibility as service recipients, patient-specific information giving, preparation for their role, and emotional support.
姑息治疗中针对非正式照护者的定制化和特定干预措施较为少见。我们旨在根据照护者的经验，提供证据以制定后续的适当干预措施。
对 20 名居家癌症姑息治疗的非正式癌症照护者进行了单次、半结构化的定性访谈。
照护者报告称，他们需要为自己的照护角色做好准备，让专业人员能够看到他们，获得关于患者病情的清晰和具体的信息，并获得情感上的支持。他们描述了面临的挑战，包括不确定性、目睹疾病进展时的痛苦，以及每天都要应对经济问题、个人时间、自身健康和睡眠问题的困扰。
考虑到时间压力和照护者时间有限，干预措施应该简短，并旨在提高他们作为服务接受者的可见性、提供针对患者的具体信息、为其角色做好准备以及提供情感支持。
