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制定一个针对骨关节炎患者的简短多学科教育计划。

Development of a brief multidisciplinary education programme for patients with osteoarthritis.

机构信息

National Resource Centre for Rehabilitation in Rheumatology, Diakonhjemmet Hospital, PO box 23 Vinderen, 0319 Oslo, Norway.

出版信息

BMC Musculoskelet Disord. 2011 Nov 11;12:257. doi: 10.1186/1471-2474-12-257.

Abstract

BACKGROUND

Osteoarthritis (OA) is a prevalent progressive musculoskeletal disorder, leading to pain and disability. Patient information and education are considered core elements in treatment guidelines for OA; however, there is to our knowledge no evidence-based recommendation on the best approach, content or length on educational programmes in OA.

OBJECTIVE

to develop a brief, patient oriented disease specific multidisciplinary education programme (MEP) to enhance self-management in patients with OA.

METHOD

Twelve persons (80% female mean age 59 years) diagnosed with hand, hip or knee OA participated in focus group interviews. In the first focus group, six participants were interviewed about their educational needs, attitudes and expectations for the MEP. The interviews were transcribed verbatim and thereafter condensed.Based on results from focus group interviews, current research evidence, clinical knowledge and patients' experience, a multidisciplinary OA team (dietist, nurse, occupational therapist, pharmacist, physical therapist and rheumatologist) and a patient representative developed a pilot-MEP after having attended a work-shop in health pedagogics. Finally, the pilot-MEP was evaluated by a second focus group consisting of four members from the first focus group and six other experienced patients, before final adjustments were made.

RESULTS

The focus group interviews revealed four important themes: what is OA, treatment options, barriers and coping strategies in performing daily activities, and how to live with osteoarthritis. Identified gaps between patient expectations and experience with the pilot-programme were discussed and adapted into a final MEP. The final MEP was developed as a 3.5 hour educational programme provided in groups of 6-9 patients. All members from the multidisciplinary team are involved in the education programme, including a facilitator who during the provision of the programme ensures that the individual questions are addressed. As part of an ongoing process, a patient representative regularly attends the MEP and gives feedback concerning content and perceived value.

CONCLUSION

A MEP has been developed to enhance self-management in patients with OA attending a multidisciplinary OA outpatient clinic. The effectiveness of the MEP followed by individual consultations with members of the multidisciplinary team is currently evaluated in a randomised controlled trial with respect to patient satisfaction and functioning.

摘要

背景

骨关节炎(OA)是一种常见的进行性肌肉骨骼疾病,可导致疼痛和残疾。患者信息和教育被认为是 OA 治疗指南的核心要素;然而,据我们所知,目前尚无关于 OA 教育计划的最佳方法、内容或长度的循证建议。

目的

制定一个简短的、以患者为中心的、针对特定疾病的多学科教育计划(MEP),以增强 OA 患者的自我管理能力。

方法

12 名(80%为女性,平均年龄 59 岁)被诊断为手部、髋部或膝部 OA 的患者参加了焦点小组访谈。在第一次焦点小组中,六名参与者接受了关于他们的教育需求、对 MEP 的态度和期望的访谈。访谈内容逐字记录并进行了浓缩。基于焦点小组访谈的结果、当前的研究证据、临床知识和患者的经验,一个多学科 OA 团队(营养师、护士、职业治疗师、药剂师、物理治疗师和风湿病学家)和一名患者代表在参加了一个健康教育学研讨会后,开发了一个试点-MEP。最后,由第一次焦点小组的四名成员和其他六名有经验的患者组成的第二次焦点小组对试点-MEP 进行了评估,然后进行了最终调整。

结果

焦点小组访谈揭示了四个重要主题:什么是 OA、治疗选择、进行日常活动的障碍和应对策略、以及如何与骨关节炎共存。讨论了患者期望与试点计划经验之间的差距,并将其纳入最终的 MEP 中。最终的 MEP 被开发为一个 3.5 小时的教育计划,以 6-9 名患者为一组提供。多学科团队的所有成员都参与了教育计划,包括一名协调员,他在提供计划的过程中确保解决个别问题。作为一个持续过程的一部分,一名患者代表定期参加 MEP,并就内容和感知价值提供反馈。

结论

已经开发了一个 MEP,以增强多学科 OA 门诊就诊患者的自我管理能力。目前,正在一项随机对照试验中评估 MEP 与多学科团队成员的个别咨询相结合对患者满意度和功能的效果。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fa15/3262862/1e8efa550c4c/1471-2474-12-257-1.jpg

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