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从患者角度理解膝关节骨关节炎:一项定性研究。

Understanding knee osteoarthritis from the patients' perspective: a qualitative study.

作者信息

Carmona-Terés Victoria, Moix-Queraltó Jenny, Pujol-Ribera Enriqueta, Lumillo-Gutiérrez Iris, Mas Xavier, Batlle-Gualda Enrique, Gobbo-Montoya Milena, Jodar-Fernández Lina, Berenguera Anna

机构信息

Department of Basic, Evolutionary and Educational Psychology, Universitat Autònoma de Barcelona; Psychology Faculty, Building B. UAB Campus, Bellaterra, Barcelona, 08193, Spain.

Primary Care University Research Institute (IDIAP Jordi Gol), Gran Via Corts Catalanes, 587, àtic, Barcelona, 08007, Spain.

出版信息

BMC Musculoskelet Disord. 2017 May 30;18(1):225. doi: 10.1186/s12891-017-1584-3.

DOI:10.1186/s12891-017-1584-3
PMID:28558738
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5450398/
Abstract

BACKGROUND

No studies of Health Coach Interventions for knee OA sufferers that include patients' perspectives have been published. The study assesses current clinical practice and primary care professionals' advice from the patients' perspective, in order to obtain a participative design for a complex intervention based on coaching psychology. Moreover, wants to analyse the experiences, perceptions, cognitive evaluation, values, emotions, beliefs and coping strategies of patients with knee osteoarthritis, and secondly the impact of these factors in the Self-management of this condition.

METHODS

It is an interpretative qualitative study. The study included patients with diagnosis of knee osteoarthritis (OA) from 4 primary health care centres in Barcelona. A theoretical sampling based on a prior definition of participants' characteristics was carried out. Ten semi-structured interviews with knee OA patients were carried out. A content thematic analysis was performed following a mixed-strategy text codification in Lazarus framework and in emerging codes from the data.

RESULTS

The results are structured in two blocks: Experiences and perceptions of informants and Experiences of knee osteoarthritis according to the Lazarus model. Regarding experiences and perceptions of informants: Some participants reported that the information was mostly provided by health professionals. Informants know which food they should eat to lose weight and the benefits of weight loss. Moreover, participants explained that they like walking but that sometimes it is difficult to put into practice. Regarding experiences of knee osteoarthritis according Lazarus model: Cognitive evaluation is influenced by cognitive distortions such as obligation, guilt, dramatization and catastrophism.

VALUES

Family is the value most associated with wellbeing. Helping others is another recurring value. Emotions: Most participants explain that they feel anxiety, irritability or sadness. Beliefs: To some, physiotherapy helps them feel less pain. However, others explain that it is of no use to them. Participants are aware of the association overweight- pain. Coping strategies: The strategies for coping with emotions aim to reduce psychological distress (anxiety, sadness, anger) and some are more active than others.

CONCLUSIONS

The study highlights that patients with knee osteoarthritis require a person-centered approach that provides them with strategies to overcome the psychological distress caused by this condition.

摘要

背景

尚未发表过包含患者观点的针对膝骨关节炎患者的健康教练干预研究。该研究从患者角度评估当前临床实践和初级保健专业人员的建议,以便获得基于教练心理学的复杂干预的参与式设计。此外,研究旨在分析膝骨关节炎患者的经历、认知、认知评估、价值观、情绪、信念和应对策略,其次分析这些因素对该疾病自我管理的影响。

方法

这是一项解释性定性研究。该研究纳入了来自巴塞罗那4个初级卫生保健中心的膝骨关节炎(OA)诊断患者。基于参与者特征的先前定义进行了理论抽样。对10名膝骨关节炎患者进行了半结构化访谈。在拉扎勒斯框架和数据中出现的编码基础上,采用混合策略文本编码进行了内容主题分析。

结果

结果分为两个部分: informant的经历和认知以及根据拉扎勒斯模型的膝骨关节炎经历。关于informant的经历和认知:一些参与者报告说,信息大多由卫生专业人员提供。informant知道他们应该吃哪些食物来减肥以及减肥的好处。此外,参与者解释说他们喜欢散步,但有时很难付诸实践。关于根据拉扎勒斯模型的膝骨关节炎经历:认知评估受诸如义务、内疚、戏剧化和灾难化等认知扭曲的影响。

价值观

家庭是与幸福感最相关的价值观。帮助他人是另一个反复出现的价值观。情绪:大多数参与者解释说他们感到焦虑、易怒或悲伤。信念:对一些人来说,物理治疗有助于减轻疼痛。然而,其他人解释说这对他们没用。参与者意识到超重与疼痛之间的关联。应对策略:应对情绪的策略旨在减轻心理困扰(焦虑、悲伤、愤怒),有些策略比其他策略更积极。

结论

该研究强调,膝骨关节炎患者需要一种以患者为中心的方法,为他们提供克服这种疾病所引起的心理困扰的策略。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/34c4/5450398/ef3a9209a509/12891_2017_1584_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/34c4/5450398/ef3a9209a509/12891_2017_1584_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/34c4/5450398/ef3a9209a509/12891_2017_1584_Fig1_HTML.jpg

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