Acute Care Transport Services, Hospital for Sick Children, Toronto, Ontario, Canada.
J Adv Nurs. 2012 Sep;68(9):2008-20. doi: 10.1111/j.1365-2648.2011.05891.x. Epub 2011 Nov 23.
This paper is a report of a descriptive study of mothers' experiences in caring for preterm or term infants following discharge from a neonatal unit, including how they manage infant pain/discomfort.
Few studies have focused on the transition that parents experience after infants are discharged home and little is known about parents' caregiving experiences when their infant has pain/discomfort. Greater knowledge about these issues will help healthcare professionals to better support parents.
Nine mothers were interviewed in 2007-2008 about their caregiving experiences in the months following neonatal unit discharge. Interviews were conducted using a descriptive phenomenological approach and analysed using Giorgi's framework.
Six themes formed mothers' experiences: apprehension, confidence, responsibility, awareness, normalcy and perspective. Mothers had apprehension about their infants' fragile health, losing support of the neonatal team, and performing medical procedures. They developed confidence as infant health improved. Responsibility for performing infant medical care often dominated mothers' experiences. Awareness of infant needs was described as a learning process utilizing external resources, trial-and-error, and an internal intuitive sense; particularly in identifying and dealing with infant pain/discomfort. During the transition to prior social environments, concerns about normalcy arose. Over time, mothers' gained a philosophical perspective and saw their experiences in a positive light.
The apprehension-confidence continuum model provides a framework for nursing assessment of mothers' needs following their infants' discharge from a neonatal unit. Factors such as infant health, medical procedures, and family or health professional support may influence the degree of apprehension or confidence.
本研究旨在报告一项描述性研究，探讨母亲在新生儿重症监护病房出院后照顾早产儿或足月婴儿的经验，包括她们如何管理婴儿的疼痛/不适。
很少有研究关注父母在婴儿出院回家后面临的过渡阶段，也很少了解父母在婴儿感到疼痛/不适时的照顾经验。更多地了解这些问题将有助于医疗保健专业人员更好地支持父母。
2007-2008 年，我们对 9 位母亲进行了访谈，了解她们在新生儿重症监护病房出院后几个月的照顾经验。访谈采用描述性现象学方法进行，并使用 Giorgi 的框架进行分析。
母亲的经验形成了 6 个主题：焦虑、信心、责任、意识、正常化和观点。母亲对婴儿脆弱的健康、失去新生儿团队的支持以及执行医疗程序感到焦虑。随着婴儿健康状况的改善，她们建立了信心。承担照顾婴儿医疗的责任往往主导着母亲的经验。对婴儿需求的意识被描述为一个学习过程，利用外部资源、反复试验和内在直觉感；特别是在识别和处理婴儿的疼痛/不适方面。在向以前的社会环境过渡期间，对正常化的担忧出现了。随着时间的推移，母亲们获得了哲学观点，并从积极的角度看待自己的经历。
焦虑-信心连续体模型为护理人员评估新生儿重症监护病房出院后母亲的需求提供了一个框架。婴儿的健康状况、医疗程序以及家庭或健康专业人员的支持等因素可能会影响焦虑或信心的程度。
