McMullen Carmit K, Wasserman Joseph, Altschuler Andrea, Grant Marcia L, Hornbrook Mark C, Liljestrand Petra, Briggs Catherine, Krouse Robert S
Center for Health Research, Kaiser Permanente Northwest, Portland, OR, USA.
Clin J Oncol Nurs. 2011 Dec;15(6):644-50. doi: 10.1188/11.CJON.644-650.
This ethnography of family caregiving explored why peristomal skin complications are common and undertreated among colorectal cancer survivors with intestinal ostomies. Data were collected through in-depth interviews with 31 cancer survivors and their family caregivers, fieldwork, structured assessments, and medical records review, and analyzed with qualitative theme and matrix analyses. Survivors who received help changing the skin barrier around their stoma had fewer obstacles to detection and treatment of peristomal skin complications. Half of the survivors received unpaid help with ostomy care, and all such help came from spouses. Married couples who collaborated in ostomy care reported that having assistance in placing the ostomy appliance helped with preventing leaks, detecting skin changes, and modifying ostomy care routines. In addition, survivors who struggled to manage ostomy care independently reported more obstacles to alleviating and seeking treatment for skin problems. Oncology nurses can improve treatment of peristomal skin problems by asking patients and caregivers about ostomy care and skin problems, examining the peristomal area, and facilitating routine checkups with a wound, ostomy, and continence nurse.
这项关于家庭护理的人种志研究探讨了为什么在患有肠道造口术的结直肠癌幸存者中,造口周围皮肤并发症很常见且治疗不足。通过对31名癌症幸存者及其家庭护理人员进行深入访谈、实地调查、结构化评估和病历审查来收集数据,并采用定性主题分析和矩阵分析进行分析。在造口周围皮肤屏障更换方面获得帮助的幸存者,在造口周围皮肤并发症的检测和治疗方面遇到的障碍较少。一半的幸存者在造口护理方面获得了无偿帮助,所有此类帮助均来自配偶。在造口护理方面相互协作的已婚夫妇报告称,在放置造口器具时得到帮助有助于防止渗漏、检测皮肤变化以及调整造口护理常规。此外,难以独立管理造口护理的幸存者在缓解和寻求皮肤问题治疗方面遇到更多障碍。肿瘤学护士可以通过询问患者和护理人员有关造口护理和皮肤问题、检查造口周围区域以及促进与伤口、造口和失禁护理护士的定期检查,来改善造口周围皮肤问题的治疗。