测量儿童在慢性病管理方面的决策参与度。
Measuring children's decision-making involvement regarding chronic illness management.
机构信息
Department of Anesthesiology and Critical Care Medicine, The Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA.
出版信息
J Pediatr Psychol. 2012 Apr;37(3):292-306. doi: 10.1093/jpepsy/jsr097. Epub 2011 Dec 2.
OBJECTIVES
To develop a measure of decision-making involvement in children and adolescents with cystic fibrosis, diabetes, and asthma.
METHODS
Parent-child dyads completed the Decision-Making Involvement Scale (DMIS) and measures of locus of control and family communication. DMIS items were subjected to exploratory and confirmatory factor analysis (CFA). Temporal stability and construct validity were assessed.
RESULTS
The parent form was reduced to 20 items representing five factors. CFA showed that the five factors were an acceptable fit to the parent- and child-report data. Internal consistency values ranged from 0.71 to 0.91. Temporal stability was supported by moderate-substantial intraclass correlation coefficients. DMIS subscales were associated with child age, child locus of control, and family communication.
CONCLUSIONS
The DMIS can be used to inform our understanding of the transition to greater independence for illness management. Additional research is needed to examine outcomes of decision-making involvement, including treatment adherence and responsibility.
目的
为患有囊性纤维化、糖尿病和哮喘的儿童和青少年制定一项决策参与度的测量工具。
方法
家长-孩子二人组完成了决策参与度量表（DMIS）和控制源以及家庭沟通的测量。DMIS 项目进行了探索性和验证性因素分析（CFA）。评估了时间稳定性和结构有效性。
结果
家长形式简化为 20 个项目，代表五个因素。CFA 表明，五个因素与父母和孩子的报告数据具有可接受的拟合度。内部一致性值范围为 0.71 至 0.91。适度-大量的组内相关系数支持时间稳定性。DMIS 分量与儿童年龄、儿童控制源和家庭沟通有关。
结论
DMIS 可用于帮助我们了解疾病管理向更大独立性的过渡。需要进一步研究决策参与度的结果，包括治疗依从性和责任。
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