Webb B
Anglia College of Higher Education, Chelmsford, England.
Child Care Health Dev. 1990 Sep-Oct;16(5):319-29. doi: 10.1111/j.1365-2214.1990.tb00664.x.
For parents to be told that their child has been diagnosed as having retinoblastoma is totally devastating. Retinoblastoma is a cancerous condition of the eye which occurs mostly in children, usually before the age of 3 years. To be confronted with the problem of sight loss and cancer is a tremendous shock. In appreciation of this, the staff of Moorfields Eye Hospital in London were well aware of the need and desire of parents to form a self-help group for mutual support during this traumatic period in parents' lives. The purpose of this article is to discuss the importance of forming a self-help group for families with children affected by retinoblastoma and to describe how the Retinoblastoma Society was established.
当父母被告知他们的孩子被诊断患有视网膜母细胞瘤时，这绝对是毁灭性的打击。视网膜母细胞瘤是一种眼部的癌症病症，大多发生在儿童身上，通常在3岁之前。面临视力丧失和癌症的问题是一个巨大的冲击。鉴于此，伦敦摩尔菲尔德眼科医院的工作人员深知父母在生活中这段痛苦时期需要并渴望成立一个自助组织以相互支持。本文的目的是讨论为受视网膜母细胞瘤影响的儿童家庭成立自助组织的重要性，并描述视网膜母细胞瘤协会是如何建立的。
