Ruffin J E, Creed J M, Jarvis C
Children's Center for Cancer and Blood Disorders, Richland Memorial Hospital, Columbia, SC 29203, USA.
Cancer Pract. 1997 Mar-Apr;5(2):99-104.
The authors describe a clinical intervention program designed for children recently diagnosed with cancer and their families. The rationale for a family weekend retreat, the planning process, and its implementation are outlined.
Staff members (nurses, social workers, child life specialists, and physicians) at the Children's Center for Cancer and Blood Disorders of the Richland Memorial Hospital in Columbia, South Carolina, conducted a comprehensive needs assessment of the families of children recently diagnosed with cancer. Subsequently, staff members planned and implemented the Family Weekend Retreat for these patients and their families. The program was designed to provide education to patients and parents, to reduce isolation within the family and among family systems, and to reduce individual and family stress.
Using a 19-item evaluative questionnaire, the participating families indicated that the Family Weekend Retreat met their needs for education, recreation, and mutual support. The families expressed an interest in, and subsequently held, a retreat reunion.
This program may be useful to other clinicians and/or cancer treatment facilities that wish to provide a network of support among families of recently diagnosed children who are struggling through the cancer experience.
作者描述了一个为近期被诊断患有癌症的儿童及其家庭设计的临床干预项目。概述了家庭周末静修活动的基本原理、规划过程及其实施情况。
南卡罗来纳州哥伦比亚市里奇兰纪念医院儿童癌症与血液疾病中心的工作人员（护士、社会工作者、儿童生活专家和医生）对近期被诊断患有癌症的儿童家庭进行了全面的需求评估。随后，工作人员为这些患者及其家庭策划并实施了家庭周末静修活动。该项目旨在为患者和家长提供教育，减少家庭内部及家庭系统之间的孤立状态，并减轻个人和家庭压力。
通过一份包含19个项目的评估问卷，参与的家庭表示家庭周末静修活动满足了他们在教育、娱乐和相互支持方面的需求。这些家庭表达了对静修活动重聚的兴趣，并随后举行了重聚活动。
该项目可能对其他希望在近期被诊断患有癌症、正在经历抗癌过程的儿童家庭之间提供支持网络的临床医生和/或癌症治疗机构有用。
