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呈现与干预:在孕早期产前知识生产和决策中“做好”护理。

Representing and intervening: 'doing' good care in first trimester prenatal knowledge production and decision-making.

机构信息

Steno Health Promotion Centre, Gentofte, Denmark.

出版信息

Sociol Health Illn. 2012 Feb;34(2):283-98. doi: 10.1111/j.1467-9566.2011.01414.x. Epub 2012 Jan 18.

Abstract

This article investigates processes of knowledge production and decision-making in the practice of the first trimester prenatal risk assessment (FTPRA) at an ultrasound clinic in Denmark. On the basis of ethnographic material and interviews with professionals facilitating FTPRAs in Denmark, we draw attention to the active engagement of health professionals in this process. Current professional and policy debate over the use of prenatal testing emphasises the need for informed choice making and for services that provide prospective parents with what is referred to as 'non-directive counselling'. Studies focusing on professional practice of prenatal counselling tend to deal mainly with how professionals fail to live up to such ideals in practice. In this article we extend such studies by drawing attention to practices of care in prenatal testing and counselling. In doing so, we identify three modes of 'doing' good care: attuning expectations and knowledge, allowing resistance and providing situated influence in the relationship between the pregnant woman and the professional. Such practices may not be seen as immediately compatible with the non-directive ethos, but they express ways of reducing emotional suffering and supporting a pregnant woman's ability to make meaningful choices on the basis of uncertain knowledge. As such, these practices can be seen as representing another (caring) solution to the problem of paternalism and authoritarian power. In opposition to an ethics aiming at non-interference (non-directiveness) such modes of doing good care express an ethics of being locally accountable for the ways in which programmes of prenatal testing intervene in pregnant women's lives and of taking responsibility for the entities and phenomena that emerge through such knowledge production.

摘要

本文考察了丹麦一家超声诊所中,在进行第一孕期产前风险评估(FTPRA)时,知识生产和决策的过程。根据民族志材料和对丹麦促进 FTPRA 的专业人士的访谈,我们注意到健康专业人员在这一过程中的积极参与。当前,关于产前检测使用的专业和政策辩论强调了需要进行知情选择,并为准父母提供所谓的“非指导性咨询”服务。专注于产前咨询专业实践的研究往往主要涉及专业人员在实践中如何未能达到这些理想。在本文中,我们通过关注产前检测和咨询中的护理实践,扩展了这些研究。在这样做的过程中,我们确定了三种“做好”护理的模式:调整期望和知识,允许抵抗,并在孕妇和专业人员之间的关系中提供情境影响。这些做法可能不会被视为与非指导性精神直接兼容,但它们表达了减少情感痛苦和支持孕妇在不确定知识基础上做出有意义选择的方式。因此,这些做法可以被视为代表了另一种(关怀)解决方案,以解决家长式作风和专制权力的问题。与旨在不干预的伦理(非指导性)相反,这些做好护理的模式表达了一种伦理,即为产前检测干预孕妇生活的方式以及为通过这种知识生产产生的实体和现象负责承担当地责任。

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