Osborne Lisa A, Bindemann Neil, Noble J Gareth, Reed Phil
Long-term and Chronic Conditions Centre, College of Human and Health Sciences, Swansea University, Swansea, UK.
Chronic Illn. 2012 Jun;8(2):112-20. doi: 10.1177/1742395312436747. Epub 2012 Feb 3.
This study examined whether quality of life areas, that were considered to be important by people with long-term and chronic conditions, altered as a function of their age ('maturational') and time since diagnosis ('adaptational'). Seventy-one individuals from two age groups (31-40 and 41-50 years), who had been diagnosed for different lengths of time (<1 year and 10-20 years), creating four groups, were asked to say what quality of life meant to them, and the results were qualitatively analysed. The key theme in determining the quality of life across the entire sample was 'independence and normality' in the participants' lives. However, the other key themes differed across the groups, suggesting that both 'maturation' and 'adaptation' play a role in determining the key areas that people consider, relating to their quality of life. The younger newly diagnosed group made more mention of 'involvement' than the other three groups, all of which mentioned different forms of wellbeing (social-emotional, physical and psychological) as the second most important aspect of their quality of life. These findings have implications for the assessment of quality of life.
本研究探讨了长期和慢性疾病患者认为重要的生活质量领域是否会因其年龄（“成熟度”）和确诊后的时间（“适应度”）而发生变化。来自两个年龄组（31 - 40岁和41 - 50岁）的71个人，他们被诊断出患病的时间长短不同（<1年和10 - 20年），由此形成了四个组，被要求说出生活质量对他们意味着什么，并对结果进行了定性分析。在整个样本中，决定生活质量的关键主题是参与者生活中的“独立和正常”。然而，其他关键主题在不同组之间存在差异，这表明“成熟”和“适应”在决定人们认为与生活质量相关的关键领域方面都发挥了作用。新确诊的较年轻组比其他三组更多地提及“参与”，而其他三组都提到不同形式的幸福（社会情感、身体和心理方面）是他们生活质量的第二重要方面。这些发现对生活质量的评估具有启示意义。
