Joo D J, Son S, Kim H J, Lee J E, You J Y, Lee S Y, Kim M S, Kim S I, Kim Y S
The Research Institute for Transplantation, Yonsei University College of Medicine, Seoul, Korea.
Transplant Proc. 2012 Jan;44(1):91-3. doi: 10.1016/j.transproceed.2011.12.051.
This study examined the current state of information on renal replacement therapy and the educational demands of kidney transplant recipients.
The study was conducted through a survey. The questionnaire of this study was developed by researchers and was completed by 72 kidney recipients.
The recipients were most frequently informed of hemodialysis (87.5%), followed by kidney transplantation (69.4%) or peritoneal dialysis (48.6%) as a modality of renal replacement therapy at the time of diagnosis of chronic renal failure. Information about kidney transplantation was provided when they were diagnosed with end-stage renal disease (ESRD; 33.3%) or right after initiation of dialysis (15.3%) or a few years thereafter (9.7%). They were informed about kidney transplantation mostly by transplantation surgeons (mean degree score = 3.1 ± 1.3; range, 1-4), followed in order by transplant coordinators, nephrologists, family members, other patients, artificial kidney unit nurses, and mass media or internet. Regarding the influence of the information on their decision to receive a transplant, the mean score was 3.2 ± 1.2 (range, 1-5). Also, kidney transplantation was evaluated as the best renal replacement therapy for work, pregnancy/delivery, traveling, and diet.
Patients diagnosed with ESRD are not fully informed of transplantation as a primary optimal renal replacement therapy for their quality of life.
本研究调查了肾脏替代治疗的信息现状以及肾移植受者的教育需求。
本研究通过一项调查开展。研究问卷由研究人员编制,72名肾移植受者完成了问卷。
在慢性肾衰竭诊断时,受者最常被告知的肾脏替代治疗方式是血液透析(87.5%),其次是肾移植(69.4%)或腹膜透析(48.6%)。在他们被诊断为终末期肾病(ESRD;33.3%)时、开始透析后立即(15.3%)或几年后(9.7%),他们获得了有关肾移植的信息。他们大多是从移植外科医生那里得知肾移植信息的(平均得分=3.1±1.3;范围1 - 4),其次依次是移植协调员、肾病学家、家庭成员、其他患者、人工肾科护士以及大众媒体或互联网。关于这些信息对他们接受移植决定的影响,平均得分为3.2±1.2(范围1 - 5)。此外,肾移植被认为是在工作、妊娠/分娩、旅行和饮食方面最佳的肾脏替代治疗方式。
被诊断为ESRD的患者并未充分了解肾移植作为一种能改善其生活质量的主要最佳肾脏替代治疗方式的相关信息。