Medical Systems Biology Research Center, Department of Biomedical Engineering, Tsinghua University School of Medicine, Haidian District, Beijing 100084, China.
BMC Med Inform Decis Mak. 2012 Feb 28;12:11. doi: 10.1186/1472-6947-12-11.
In April 2010, with an endorsement from the Ministry of Health of the People's Republic of China, the Chinese Society of Nephrology launched the first nationwide, web-based prospective renal data registration platform, the Chinese Renal Data System (CNRDS), to collect structured demographic, clinical, and laboratory data for dialysis cases, as well as to establish a kidney disease database for researchers and policy makers.
The CNRDS program uses information technology to facilitate healthcare professionals to create a blood purification registry and to deliver an evidence-based care and education protocol tailored to chronic kidney disease, as well as online forum for communication between nephrologists. The online portal https://www.cnrds.net is implemented as a Java web application using an Apache Tomcat web server and a MySQL database. All data are stored in a central databank to establish a Chinese renal database for research and publication purposes.
Currently, over 270,000 clinical cases, including general patient information, diagnostics, therapies, medications, and laboratory tests, have been registered in CNRDS by 3,669 healthcare institutions qualified for hemodialysis therapy. At the 2011 annual blood purification forum of the Chinese Society of Nephrology, the CNRDS 2010 annual report was reviewed and accepted by the society members and government representatives.
CNRDS is the first national, web-based application for collecting and managing electronic medical records of patients with dialysis in China. It provides both an easily accessible platform for nephrologists to store and organize their patient data and acts as a communication platform among participating doctors. Moreover, it is the largest database for treatment and patient care of end-stage renal disease (ESRD) patients in China, which will be beneficial for scientific research and epidemiological investigations aimed at improving the quality of life of such patients. Furthermore, it is a model nationwide disease registry, which could potentially be used for other diseases.
2010 年 4 月，在中国卫生部的支持下，中华医学会肾脏病学分会启动了首个全国性的、基于网络的前瞻性肾脏数据注册平台——中国肾脏病数据系统（CNRDS），以收集透析病例的结构化人口统计学、临床和实验室数据，并为研究人员和政策制定者建立肾脏病数据库。
CNRDS 计划利用信息技术，方便医疗保健专业人员创建血液净化登记册，并提供循证护理和教育方案，以适应慢性肾脏病，以及为肾脏病医生之间的交流建立在线论坛。在线门户 https://www.cnrds.net 是一个使用 Java 网络应用程序实现的，使用 Apache Tomcat 网络服务器和 MySQL 数据库。所有数据都存储在一个中央数据库中，以建立一个中国肾脏病数据库，用于研究和出版。
目前，已有超过 270000 例临床病例通过 3669 家有资格进行血液透析治疗的医疗机构在 CNRDS 中注册，包括一般患者信息、诊断、治疗、药物和实验室检查。在 2011 年中华医学会肾脏病学分会的年度血液净化论坛上，CNRDS 2010 年度报告得到了学会成员和政府代表的审查和认可。
CNRDS 是中国第一个用于收集和管理透析患者电子病历的全国性、基于网络的应用程序。它为肾脏病医生提供了一个方便易用的平台，用于存储和组织他们的患者数据，并作为参与医生之间的交流平台。此外，它还是中国最大的终末期肾病（ESRD）患者治疗和患者护理数据库，这将有助于改善此类患者生活质量的科学研究和流行病学调查。此外，它还是一个全国性疾病登记的典范，有可能被用于其他疾病。
