Royal Free Hampstead NHS Trust, London, UK.
J Clin Nurs. 2012 May;21(9-10):1215-22. doi: 10.1111/j.1365-2702.2011.04001.x. Epub 2012 Mar 3.
This study explored decision-making experiences of patients with stage 5 chronic kidney disease when opting for conservative management of their renal failure.
Dialysis is an invasive treatment, and for some older patients, there is an associated treatment burden of dialysis-related symptoms. An alternative choice is conservative management, but little is known about those who make this decision and how they are supported through the process.
Qualitative practitioner research study.
Data were generated from nine patients' naturally occurring clinic consultations with a renal clinical nurse specialist between May 2010 - July 2010. Interviews were transcribed verbatim and findings fed back at three multi-disciplinary meetings to check for relevance and resonance. Common themes were identified and codes applied.
Patients reported age and having to travel three times a week to hospital for dialysis as reasons not to opt for treatment. Others felt well without dialysis not wanting to upset the 'status quo' or to burden loved ones. Most felt equipped to make the decision following explanation and discussion with the clinical nurse specialist in the renal clinic.
Patients opting for conservative management give numerous reasons for this including old age, travel limitations, feeling well without dialysis and not wanting to be a burden, but appear content with their decision. One-to-one discussions with the clinical nurse specialist appear helpful during the decision-making process presenting an opportunity for advancing nursing roles in the chronic kidney disease service.
Understanding patients' reasons for refusing dialysis assists in supporting until death. There is an opportunity for developing nursing practice to meet the multi-faceted needs of this group.
本研究探讨了终末期慢性肾脏病患者在选择保守治疗其肾衰竭时的决策经验。
透析是一种侵入性治疗,对于一些老年患者来说,与透析相关的症状存在相关的治疗负担。另一种选择是保守治疗,但对于做出这一决定的人以及他们如何在这一过程中得到支持,人们知之甚少。
定性从业者研究。
数据来自 9 名患者与肾脏临床护士专家在 2010 年 5 月至 7 月期间的自然发生的临床咨询,访谈逐字记录,并在三次多学科会议上反馈,以检查相关性和共鸣。确定了共同的主题并应用了代码。
患者报告年龄大,每周需要旅行三次去医院透析,这是他们不选择治疗的原因。其他人感觉透析后身体良好,不想打乱“现状”或给亲人带来负担。大多数人在肾脏诊所与临床护士专家进行解释和讨论后,有能力做出决定。
选择保守治疗的患者给出了许多原因,包括年龄大、旅行受限、不透析感觉良好以及不想成为负担,但对自己的决定似乎很满意。与临床护士专家的一对一讨论似乎有助于决策过程,为在慢性肾脏病服务中推进护理角色提供了机会。
了解患者拒绝透析的原因有助于支持他们直到死亡。有机会发展护理实践,以满足这一群体的多方面需求。