Auert Elle-Jane, Trembath David, Arciuli Joanne, Thomas Donna
The University of Sydney, Sydney, Australia.
Int J Speech Lang Pathol. 2012 Apr;14(2):109-18. doi: 10.3109/17549507.2011.652673.
The aim of this study was to explore the expectations, awareness, and experiences of parents in their efforts to access evidence-based speech-language pathology (SLP) services for their children with autism spectrum disorders (ASD). Four focus groups were conducted with 20 parents of pre school aged children with ASD and transcripts were analysed using thematic analysis. Two themes emerged to account for the participants' expectations, awareness, and experiences. The two themes, "Speech-language pathology: More than just a business", and "Parents and power", represented the complex interaction between factors including the parents' access to information, their involvement in the therapy process, and their sense of empowerment. The parents in this study expressed a strong desire for evidence-based practice (EBP) to be employed. However, the parents had different views on how EBP should be achieved. The findings of this study demonstrate the importance of involving parents in therapeutic relationships as partners in the decision-making process. This means providing parents with comprehensive information, including research evidence to support the clinical decisions that need to be made, and respecting parents' preferences in the therapy process.
本研究的目的是探讨家长在为患有自闭症谱系障碍（ASD）的孩子获取循证言语病理学（SLP）服务过程中的期望、认知和经历。对20位患有ASD的学龄前儿童的家长进行了4次焦点小组访谈，并使用主题分析法对访谈记录进行了分析。出现了两个主题来解释参与者的期望、认知和经历。这两个主题“言语病理学：不止是一项业务”和“家长与权力”代表了包括家长获取信息、参与治疗过程以及他们的赋权感等因素之间的复杂相互作用。本研究中的家长表达了对采用循证实践（EBP）的强烈愿望。然而，家长们对如何实现EBP有不同的看法。本研究的结果表明，让家长作为决策过程的合作伙伴参与治疗关系非常重要。这意味着要为家长提供全面的信息，包括支持需要做出的临床决策的研究证据，并在治疗过程中尊重家长的偏好。
