Bak Moon Young Savana, Reilly Amber M, Yang Yi, Abas Hamdi, Pan Qichao, Hugh Maria L
Department of Educational Psychology, University of Minnesota, Minneapolis, MN, USA.
Department of Special Education, Lingnan Normal University, Zhanjiang, China.
Int J Dev Disabil. 2022 Nov 11;70(4):738-748. doi: 10.1080/20473869.2022.2142374. eCollection 2024.
Although researchers have investigated special educators' and clinicians' knowledge and use of evidence-based practices (EBPs), there is very little research on caregivers' perception of the importance of EBPs for their autistic children. Moreover, there is even less research on how EBPs have been translated or disseminated in international communities not within the English-speaking, Western population. In order to provide appropriate support for caregivers of autistic children in all communities, we need more information to identify possible barriers that may affect caregiver involvement. We used a survey to ask 81 Chinese caregivers of autistic children in Guangzhou, China to investigate their familiarity with EBPs for autistic individuals and any external sources used inform their decision about treatment options for their autistic child. Results showed that 58.6% of the participants had no knowledge of what an EBP was and an additional 29.7% of the participants had heard of EBPs but not sure what they were. These results amplify the need for increased dispersion of ASD intervention knowledge to global communities and how to increase caregiver knowledge on treatment options for their autistic child.
尽管研究人员已经调查了特殊教育工作者和临床医生对循证实践(EBPs)的了解和使用情况,但关于照顾者对循证实践对其自闭症孩子重要性的认知的研究却非常少。此外,关于循证实践在非英语国家、西方人群以外的国际社区中是如何转化或传播的研究更少。为了向所有社区的自闭症儿童照顾者提供适当的支持,我们需要更多信息来识别可能影响照顾者参与的潜在障碍。我们通过一项调查,询问了中国广州81名自闭症儿童的照顾者,以了解他们对自闭症个体循证实践的熟悉程度以及他们在为自闭症孩子选择治疗方案时所参考的任何外部信息来源。结果显示,58.6%的参与者不知道循证实践是什么,另外29.7%的参与者听说过循证实践,但不确定其具体内容。这些结果凸显了向全球社区扩大自闭症干预知识传播以及提高照顾者对自闭症孩子治疗方案知识了解的必要性。