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Global, regional and national burden of autism spectrum disorder from 1990 to 2019: results from the Global Burden of Disease Study 2019.全球、区域和国家自闭症谱系障碍负担 1990 年至 2019 年:来自 2019 年全球疾病负担研究的结果。
Epidemiol Psychiatr Sci. 2022 May 10;31:e33. doi: 10.1017/S2045796022000178.
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Global prevalence of autism: A systematic review update.全球自闭症患病率:系统综述更新。
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3
Early Identification of Autism Spectrum Disorder Among Children Aged 4 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2018.4 岁儿童自闭症谱系障碍的早期识别 - 自闭症和发育障碍监测网络,美国 11 个地点,2018 年。
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The Digital Divide in Technologies for Autism: Feasibility Considerations for Low- and Middle-Income Countries.技术在自闭症方面的数字鸿沟:中低收入国家的可行性考虑。
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Evidence-Based Practices for Children, Youth, and Young Adults with Autism: Third Generation Review.自闭症儿童、青少年和年轻人的循证实践:第三代综述。
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Effects of Video Modeling on the Acquisition, Maintenance, and Generalization of Playing with Imaginary Objects in Children with Autism Spectrum Disorder.视频建模对自闭症谱系障碍儿童想象性物体游戏的获得、维持和泛化的影响。
Behav Modif. 2021 Nov;45(6):1041-1069. doi: 10.1177/0145445520939856. Epub 2020 Jul 4.
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Prevalence of Autism Spectrum Disorder in China: A Nationwide Multi-center Population-based Study Among Children Aged 6 to 12 Years.中国自闭症谱系障碍患病率的全国多中心基于人群的 6 至 12 岁儿童研究。
Neurosci Bull. 2020 Sep;36(9):961-971. doi: 10.1007/s12264-020-00530-6. Epub 2020 Jun 30.
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Developing an Evaluation Framework for Parent Education and Training in Autism Spectrum Disorder: Results of a Multi-stakeholder Process.制定自闭症谱系障碍家长教育培训评估框架:多利益相关者过程的结果。
J Autism Dev Disord. 2019 Nov;49(11):4468-4481. doi: 10.1007/s10803-019-04176-w.
9
Parent Education and Training for autism spectrum disorders: Scoping the evidence.自闭症谱系障碍的家长教育与培训:证据范围界定。
Autism. 2020 Jan;24(1):7-25. doi: 10.1177/1362361319841739. Epub 2019 May 9.
10
Caregiver Voices: Cross-Cultural Input on Improving Access to Autism Services.照顾者之声:改善自闭症服务获取途径的跨文化投入。
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中国自闭症儿童照料者对循证实践的了解情况。

Familiarity of evidence based practices in Chinese caregivers of autistic children.

作者信息

Bak Moon Young Savana, Reilly Amber M, Yang Yi, Abas Hamdi, Pan Qichao, Hugh Maria L

机构信息

Department of Educational Psychology, University of Minnesota, Minneapolis, MN, USA.

Department of Special Education, Lingnan Normal University, Zhanjiang, China.

出版信息

Int J Dev Disabil. 2022 Nov 11;70(4):738-748. doi: 10.1080/20473869.2022.2142374. eCollection 2024.

DOI:10.1080/20473869.2022.2142374
PMID:38983483
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11229743/
Abstract

Although researchers have investigated special educators' and clinicians' knowledge and use of evidence-based practices (EBPs), there is very little research on caregivers' perception of the importance of EBPs for their autistic children. Moreover, there is even less research on how EBPs have been translated or disseminated in international communities not within the English-speaking, Western population. In order to provide appropriate support for caregivers of autistic children in all communities, we need more information to identify possible barriers that may affect caregiver involvement. We used a survey to ask 81 Chinese caregivers of autistic children in Guangzhou, China to investigate their familiarity with EBPs for autistic individuals and any external sources used inform their decision about treatment options for their autistic child. Results showed that 58.6% of the participants had no knowledge of what an EBP was and an additional 29.7% of the participants had heard of EBPs but not sure what they were. These results amplify the need for increased dispersion of ASD intervention knowledge to global communities and how to increase caregiver knowledge on treatment options for their autistic child.

摘要

尽管研究人员已经调查了特殊教育工作者和临床医生对循证实践(EBPs)的了解和使用情况,但关于照顾者对循证实践对其自闭症孩子重要性的认知的研究却非常少。此外,关于循证实践在非英语国家、西方人群以外的国际社区中是如何转化或传播的研究更少。为了向所有社区的自闭症儿童照顾者提供适当的支持,我们需要更多信息来识别可能影响照顾者参与的潜在障碍。我们通过一项调查,询问了中国广州81名自闭症儿童的照顾者,以了解他们对自闭症个体循证实践的熟悉程度以及他们在为自闭症孩子选择治疗方案时所参考的任何外部信息来源。结果显示,58.6%的参与者不知道循证实践是什么,另外29.7%的参与者听说过循证实践,但不确定其具体内容。这些结果凸显了向全球社区扩大自闭症干预知识传播以及提高照顾者对自闭症孩子治疗方案知识了解的必要性。