Department of Nursing and Supportive Care Research, Peter MacCallum Cancer Centre, Melbourne, Australia.
Psychooncology. 2013 Apr;22(4):940-6. doi: 10.1002/pon.3071. Epub 2012 Mar 27.
Understanding patient's perceptions about palliative care is necessary to make an effective referral. The aim was to develop and validate a measure of patient perceptions.
Items were generated through patient, family caregiver and health professional interviews. The Perceptions of Palliative Care Instrument (PPCI) was administered to 85 patients with advanced cancer (AC). A subset (n = 39) completed it 7 days later. Participants also completed the Palliative Care Outcome Scale (POS), the Edmonton Symptom Assessment Scale (ESAS) and the Distress Thermometer (DT) for validation purposes.
Factor analysis revealed four domains (positive and negative emotional and cognitive reactions to palliative care, emotional and practical palliative care needs and perceptions of health) and eight subscales with factor loadings for all items above 0.51, explaining 61-81% of the total variance. Reliability analyses revealed high internal consistency (Cronbach's alpha coefficients >0.76). Intraclass correlation coefficients showed moderate to strong correlations between time points indicating stability over time. All POS items correlated with two or more dimensions of the PPCI (all r > 0.30); ESAS total distress correlated positively with the palliative care needs domain and the DT with needs and perceived burden (all r > 0.30).
The PPCI is a four-factor, 37-item measure that assesses perceptions of palliative care held by patients with AC. The measure has good internal consistency, test-retest reliability and convergent validity.
了解患者对姑息治疗的看法对于进行有效的转介至关重要。本研究旨在开发并验证一种评估患者看法的工具。
通过对患者、家属和卫生专业人员进行访谈生成项目。将姑息治疗认知量表（PPCI）应用于 85 名晚期癌症患者（AC）。其中 39 名患者在 7 天后完成了重复测试。参与者还完成了姑息治疗结局量表（POS）、埃德蒙顿症状评估量表（ESAS）和痛苦温度计（DT），以进行验证。
因子分析显示，该量表包含四个维度（对姑息治疗的积极和消极情绪及认知反应、情绪和实际的姑息治疗需求以及对健康的认知）和八个亚量表，所有项目的因子负荷均高于 0.51，解释了 61%-81%的总方差。可靠性分析显示，内部一致性高（克朗巴赫α系数>0.76）。组内相关系数表明，两个时间点之间存在中度至强相关性，表明随时间推移具有稳定性。所有 POS 项目与 PPCI 的两个或多个维度相关（所有 r>0.30）；ESAS 总痛苦与姑息治疗需求维度以及 DT 与需求和感知负担呈正相关（所有 r>0.30）。
PPCI 是一种四因素、37 项的评估工具，用于评估 AC 患者对姑息治疗的看法。该量表具有良好的内部一致性、重测信度和聚合效度。
