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患有唇裂或腭裂或两者皆有的领养儿童需要进行特殊需求的腭裂修复手术。

Adopted children with cleft lip or palate, or both, require special needs cleft surgery.

作者信息

Hansson Emma, Svensson Henry, Becker Magnus

机构信息

Department of Clinical Sciences in Malmö, Lund University, Malmö, Sweden.

出版信息

J Plast Surg Hand Surg. 2012 Apr;46(2):75-9. doi: 10.3109/2000656X.2012.668774.

DOI:10.3109/2000656X.2012.668774
PMID:22471253
Abstract

In recent years adoption of children with cleft lip, with or without cleft palate (CLP), and other birth defects has become more common. The aim of the present study was to describe the characteristics and initial care and treatment of adopted children with CLP. A total of 25 children were referred to our department between 2008 and 2010, 7 (28%) of whom had bilateral CLP and 16 (64%) had unilateral CLP. Two children had atypical clefts. Twenty of the patients (80%) had been operated on with a lip plasty in China before adoption. Most patients (n = 14) was seen by the cleft team within two months of arrival, and 13 were operated on within a month of the first visit at our department. In total, 22 primary palatoplasties, 6 lip plasties, and 1 lip adhesion were done. There were 5 fistulas (14%) three months after the palatoplasty. On arrival, 11 (44%) of the children were carriers of methicillin-resistant Staphylococcus aureus (MRSA). Adoption of children with CLP creates new challenges for the cleft teams, as we no longer have control over the overall treatment plan as regards preoperative and surgical treatment and timing of the operations. The patients are also often carriers of resistant bacteria, which create nursing challenges. In cases where the child is older than a year and has not been operated on, we advocate that the palatoplasty, or combined lip plasty and palatoplasty, is always given priority so that speech development is not compromised.

摘要

近年来,收养唇裂伴或不伴腭裂(CLP)及其他出生缺陷儿童的情况变得更为常见。本研究的目的是描述收养的CLP儿童的特征以及初始护理和治疗情况。2008年至2010年间,共有25名儿童被转诊至我科,其中7名(28%)为双侧唇裂,16名(64%)为单侧唇裂。两名儿童患有非典型腭裂。20名患者(80%)在被收养前已在中国接受唇成形术。大多数患者(n = 14)在抵达后两个月内由腭裂团队诊治,13名患者在首次就诊于我科后的一个月内接受了手术。总共进行了22次一期腭裂修复术、6次唇成形术和1次唇粘连术。腭裂修复术后三个月有5例瘘管(14%)。抵达时,11名(44%)儿童为耐甲氧西林金黄色葡萄球菌(MRSA)携带者。收养CLP儿童给腭裂团队带来了新的挑战,因为我们不再能控制术前、手术治疗及手术时机等整体治疗方案。这些患者还常常是耐药菌携带者,这给护理带来了挑战。对于年龄超过一岁且未接受手术的儿童,我们主张始终优先进行腭裂修复术,或唇成形术与腭裂修复术联合进行,以免影响言语发育。

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Adopted children with cleft lip or palate, or both, require special needs cleft surgery.患有唇裂或腭裂或两者皆有的领养儿童需要进行特殊需求的腭裂修复手术。
J Plast Surg Hand Surg. 2012 Apr;46(2):75-9. doi: 10.3109/2000656X.2012.668774.
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引用本文的文献

1
Cleft Palate Fistula: A Review.腭裂瘘管:综述
Eplasty. 2023 Feb 1;23:e7. eCollection 2023.
2
Quality of Life of Adopted Chinese Versus Nonadopted Dutch Children with Cleft Lip and/or Palate: A Propensity Score Matched Analysis.中文译文:中文和非中文背景唇腭裂儿童生活质量的比较:倾向评分匹配分析。
Cleft Palate Craniofac J. 2022 Dec;59(12):1502-1508. doi: 10.1177/10556656211050795. Epub 2021 Dec 6.
3
Psychosocial Experiences That Support Positive Self-Concept in Children with Cleft Lip and Palate Adopted From China.在中国收养的唇腭裂儿童中支持积极自我概念的社会心理经历。
Cleft Palate Craniofac J. 2022 Dec;59(12):1509-1519. doi: 10.1177/10556656211051222. Epub 2021 Dec 3.