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本文引用的文献

1
The concept of voluntary consent.自愿同意的概念。
Am J Bioeth. 2011 Aug;11(8):6-16. doi: 10.1080/15265161.2011.583318.
2
More than the money: a review of the literature examining healthy volunteer motivations.不仅仅是为了钱:一项关于健康志愿者动机的文献综述。
Contemp Clin Trials. 2011 May;32(3):342-52. doi: 10.1016/j.cct.2010.12.003. Epub 2010 Dec 10.
3
The obligation to participate in biomedical research.参与生物医学研究的义务。
JAMA. 2009 Jul 1;302(1):67-72. doi: 10.1001/jama.2009.931.
4
Do incentives exert undue influence on survey participation? Experimental evidence.激励措施是否会对调查参与产生不当影响?实验证据。
J Empir Res Hum Res Ethics. 2008 Sep;3(3):49-56. doi: 10.1525/jer.2008.3.3.49.
5
Voluntariness of consent to research: a conceptual model.研究同意的自愿性:一个概念模型。
Hastings Cent Rep. 2009 Jan-Feb;39(1):30-9. doi: 10.1353/hcr.0.0103.
6
The live organ donor's consent: is it informed and voluntary?活体器官捐赠者的同意:是否是知情且自愿的?
Transplant Rev (Orlando). 2008 Jul;22(3):196-9. doi: 10.1016/j.trre.2008.02.004. Epub 2008 Apr 18.
7
Payment for research participation: a coercive offer?参与研究的报酬:一种强制性的提议?
J Med Ethics. 2008 May;34(5):389-92. doi: 10.1136/jme.2007.021857.
8
Voluntariness of consent for research: an empirical and conceptual review.研究同意的自愿性:一项实证与概念性综述。
Med Care. 2002 Sep;40(9 Suppl):V69-80. doi: 10.1097/01.MLR.0000023958.28108.9C.
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The paradoxical case of payment as benefit to research subjects.将支付作为对研究对象的益处这一矛盾案例。
IRB. 1989 Nov-Dec;11(6):1-3.
10
The biotech death of Jesse Gelsinger.
N Y Times Mag. 1999 Nov 28:136-140, 149-150.

自愿同意:为何价值中立的概念行不通。

Voluntary consent: why a value-neutral concept won't work.

作者信息

Wertheimer Alan

机构信息

Department of Bioethics, National Institutes of Health, Bethesda, MD, USA.

出版信息

J Med Philos. 2012 Jun;37(3):226-54. doi: 10.1093/jmp/jhs016. Epub 2012 May 2.

DOI:10.1093/jmp/jhs016
PMID:22551878
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3916751/
Abstract

Some maintain that voluntariness is a value-neutral concept. On that view, someone acts involuntarily if subject to a controlling influence or has no acceptable alternatives. I argue that a value-neutral conception of voluntariness cannot explain when and why consent is invalid and that we need a moralized account of voluntariness. On that view, most concerns about the voluntariness of consent to participate in research are not well founded.

摘要

一些人坚持认为自愿性是一个价值中立的概念。按照那种观点,如果受到控制性影响或没有可接受的选择,那么某人的行为就是非自愿的。我认为,自愿性的价值中立概念无法解释同意何时以及为何无效,我们需要一个关于自愿性的道德化解释。按照那种观点,大多数对参与研究的同意的自愿性的担忧是没有充分根据的。