Department of Dermatovenerology, 2nd Medical School of Charles University and Faculty Hospital Bulovka, Prague, Czech Republic.
Int J Dermatol. 2012 Jun;51(6):688-92. doi: 10.1111/j.1365-4632.2011.05175.x.
Atopic dermatitis (AD) still remains one of the most common childhood inflammatory skin diseases. As a chronic disease, it can have a physical and psychological effect on social functioning of the affected child as well as their family. The objective of this study was to evaluate the quality of life of children with AD of different age groups and their families.
A total of 203 children with a diagnosis of AD from newborn to 18 years of age and 202 of their parents took part in our study (as one parent did not return the questionnaire). All participants, according to their age, completed the following questionnaires: Infants' Dermatitis Quality of Life Index (IDQOL); Children's Dermatology Life Quality Index (CDLQI) - text and cartoon version; and Dermatitis Family Impact questionnaire (DFI).
The mean total IDQOL score in our study was 8.18 (SD = 5.84, n = 120). The mean total CDLQI scores in the groups of children from 7 to 13 and from 14 to 18 years were 8.58 (SD = 4.98, n = 48) and 9.89 (SD = 5.26, n = 35). There was also a proven influence of the child's AD on the quality of life of his parents with the mean score: 7.98 (SD = 6.41, n = 202).
The study demonstrated and confirmed that AD significantly impairs the children's quality of life in all age groups and also quality of life of their families. Such data give us patient-oriented information that is of great importance for understanding the situation of individuals with AD and its influence on members of their family.
特应性皮炎（AD）仍然是最常见的儿童炎症性皮肤病之一。作为一种慢性疾病，它会对受影响儿童及其家庭的社会功能产生身体和心理影响。本研究的目的是评估不同年龄组 AD 儿童及其家庭的生活质量。
共有 203 名确诊为 AD 的儿童（从新生儿到 18 岁）及其 202 名家长参与了我们的研究（因为有一位家长没有返回问卷）。所有参与者根据年龄完成了以下问卷：婴儿特应性皮炎生活质量指数（IDQOL）；儿童皮肤病生活质量指数（CDLQI）-文本和卡通版；以及皮炎家庭影响问卷（DFI）。
在我们的研究中，平均总 IDQOL 评分为 8.18（SD=5.84，n=120）。7-13 岁和 14-18 岁儿童组的平均总 CDLQI 评分为 8.58（SD=4.98，n=48）和 9.89（SD=5.26，n=35）。还证明了儿童 AD 对其父母生活质量的影响，平均评分为 7.98（SD=6.41，n=202）。
该研究表明并证实 AD 显著损害了所有年龄段儿童的生活质量，也损害了他们家庭的生活质量。这些数据为我们提供了以患者为导向的信息，对于了解 AD 患者的情况及其对家庭成员的影响非常重要。
