Ricci Giampaolo, Bendandi Barbara, Bellini Federica, Patrizi Annalisa, Masi Massimo
Department of Pediatrics, University of Bologna, Italy.
Pediatr Allergy Immunol. 2007 May;18(3):245-9. doi: 10.1111/j.1399-3038.2006.00502.x.
The aim of this study was to determine the ways in which atopic dermatitis (AD) affects the lives of young Italian children and their families, in terms of quality of life, and correlate it with AD severity and the perception of severity as estimated by the family. The parents of 45 children aged 3-84 months affected by AD were asked to complete two validated questionnaires after clinical examination. The first questionnaire was about the child's quality of life (Infants' Dermatitis Quality of Life Index); the second regarded the family's quality of life (Dermatitis Family Impact questionnaire). In a further question parents were asked to estimate the severity of the disease of the child. Children's quality of life appeared slightly-moderately altered (mean score 10.2) compared with the value of a control group (3.3), and itching, sleep problems and the influence of the disease on the child's mood were the cause of greatest discomfort for the child. Family quality of life appeared moderately altered (mean score 11) compared with the value of the control group (7.4). The greatest problem was the disturbed sleep of the family members. Other important problems were the economic cost for the management of the disease and the tiredness and irritability caused by the disease in parents. Analysis of the responses confirms the incorrect estimation of the severity of the disease perceived by the family. In our opinion, the two questionnaires may be useful in clinical practice to understand better the difficulties suffered by a family with a child affected by AD. They also provide data that may help to improve the clinical approach for the child and the family, and to assess the degree of under-/overestimation of the disease by the family.
本研究的目的是确定特应性皮炎（AD）在生活质量方面对意大利幼儿及其家庭生活的影响方式，并将其与AD的严重程度以及家庭估计的严重程度认知相关联。45名年龄在3 - 84个月受AD影响的儿童的父母在临床检查后被要求完成两份经过验证的问卷。第一份问卷是关于儿童的生活质量（婴儿性皮炎生活质量指数）；第二份涉及家庭的生活质量（皮炎家庭影响问卷）。在另一个问题中，要求父母估计孩子疾病的严重程度。与对照组的值（3.3）相比，儿童的生活质量出现了轻度至中度的改变（平均得分10.2），瘙痒、睡眠问题以及疾病对儿童情绪的影响是儿童最大的不适原因。与对照组的值（7.4）相比，家庭生活质量出现了中度改变（平均得分11）。最大的问题是家庭成员睡眠受到干扰。其他重要问题是疾病管理的经济成本以及疾病给父母带来的疲惫和易怒。对回答的分析证实了家庭对疾病严重程度认知的错误估计。我们认为，这两份问卷在临床实践中可能有助于更好地了解患有AD儿童的家庭所面临的困难。它们还提供了有助于改善针对儿童和家庭的临床方法以及评估家庭对疾病低估/高估程度的数据。
