Department of Physical Therapy, University of Toronto, Toronto, Canada.
Disabil Rehabil. 2013 Jan;35(1):36-46. doi: 10.3109/09638288.2012.687029. Epub 2012 May 24.
To use the World Health Organization's International Classification of Functioning, Disability and Health (ICF) to explore the experiences of women living with self-identified HIV-associated neurocognitive challenges.
This interpretive, qualitative study involved key informant interviews with 16 women with self-identified HIV-associated neurocognitive challenges. Data were collected through 60-90 min, in-depth, semi-structured interviews. Thematic analysis was performed using an inductive approach. Theoretical analysis then used the ICF to reconceptualize the data using a disability lens.
Participants perceived impairments (e.g. memory loss, difficulty multi-tasking) and participation restrictions (e.g. parenting, work roles) resulting from their neurocognitive challenges as having a larger impact on their daily lives than activity limitations (e.g. difficulty with chores). Participants held contrasting views about parenting: women with children drew strength from parenting whereas women without children worried that parenting could compromise their health. Participation in work and volunteering roles was viewed as integral to managing neurocognitive challenges and health overall.
Conceptualizing neurocognitive challenges through a disability lens focuses attention on how impairments interact with other realities in these women's lives. This exploratory study reveals the need for future research exploring perceptions among people living with HIV-associated neurocognitive challenges with attention to aging and among other vulnerable groups.
运用世界卫生组织的《国际功能、残疾和健康分类》（ICF）来探索自我报告的与 HIV 相关的神经认知障碍的女性的生活体验。
本解释性定性研究采用关键知情人访谈法，对 16 名自我报告的与 HIV 相关的神经认知障碍的女性进行了访谈。通过 60-90 分钟的深入半结构化访谈收集数据。采用归纳法进行主题分析。理论分析然后使用 ICF 从残疾的角度重新构建数据。
参与者认为他们的神经认知障碍导致的障碍（例如记忆力减退、难以同时处理多项任务）和参与限制（例如育儿、工作角色）对他们的日常生活影响比活动限制（例如家务困难）更大。参与者对育儿有不同的看法：有孩子的女性从育儿中汲取力量，而没有孩子的女性则担心育儿会影响她们的健康。参与工作和志愿角色被视为管理神经认知障碍和整体健康的重要组成部分。
通过残疾视角来理解神经认知障碍，将注意力集中在这些女性生活中的障碍如何与其他现实相互作用。这项探索性研究揭示了未来研究的必要性，需要关注艾滋病毒相关神经认知障碍患者的认知，包括关注老龄化和其他弱势群体。
