School of Nursing, The University of North Carolina at Chapel Hill, NC, USA.
Issues Ment Health Nurs. 2012 Jun;33(6):363-9. doi: 10.3109/01612840.2012.656823.
There have been no published studies that measure health-related stigma in individuals with sickle cell disease (SCD). This study provides preliminary validity and reliability of the Sickle Cell Disease Health-Related Stigma Scale (SCD-HRSS). Using a sample of 77 young adults with SCD, ages 18-35 years, the results support the reliability of the SCD-HRSS with an overall Cronbach's alpha reliability of 0.84 and construct validity with a positive correlation between SCD-HRSS and a measure of depressive symptoms. Participants reported the highest levels of perceived stigma from the general public, then doctors, and lastly family. Limitations and directions for future research are discussed.
目前尚无研究测量镰状细胞病（SCD）患者的与健康相关的污名。本研究提供了镰状细胞病与健康相关污名量表（SCD-HRSS）的初步效度和信度。本研究使用了 77 名年龄在 18-35 岁的 SCD 年轻成年人样本，结果支持 SCD-HRSS 的可靠性，总体 Cronbach's alpha 信度为 0.84，与抑郁症状测量呈正相关，具有结构有效性。参与者报告了来自公众、医生和家人的最高程度的污名感知。讨论了研究的局限性和未来研究方向。
