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使用社会支持进行镰状细胞携带着身份沟通。

Use of social support during communication about sickle cell carrier status.

机构信息

Center for Patient Care and Outcomes Research, Medical College of Wisconsin, Milwaukee 53226, USA.

出版信息

Patient Educ Couns. 2012 Aug;88(2):203-8. doi: 10.1016/j.pec.2012.03.018. Epub 2012 May 31.

Abstract

OBJECTIVE

To examine the use of social support behaviors by primary care providers during delivery of positive newborn screening results for Sickle Cell Anemia carrier status.

METHODS

Transcripts from 125 primary care providers who conveyed Sickle Cell Anemia carrier status to standardized parents were content analyzed using categories derived from Cutrona and Suhr's social support taxonomy. Frequencies and cross-tabulation matrices were calculated to study providers' social support utilization.

RESULTS

Results showed most primary care providers (80%) incorporate social support behaviors into delivery of Sickle Cell Anemia carrier results and most frequently employed social network (61.6%) and informational support (38.4%) behaviors. Providers used tangible aid (8%), esteem (1.6%), and emotional support (9.6%) behaviors less frequently.

CONCLUSION

Cutrona and Suhr's taxonomy may be a useful tool for assessing supportive communication during the delivery of Sickle Cell Anemia carrier status and could be incorporated into population scale assessments of communication quality assurance.

PRACTICE IMPLICATIONS

Primary care providers may need training in how to adapt supportive behaviors to parents' needs during communication of Sickle Cell Anemia carrier status. They also may benefit from specific training about how to use esteem and emotional support.

摘要

目的

研究初级保健提供者在传递镰状细胞贫血携带者阳性筛查结果时使用社会支持行为的情况。

方法

对 125 名向标准化父母传达镰状细胞贫血携带者身份的初级保健提供者的转录本进行内容分析,使用 Cutrona 和 Suhr 的社会支持分类法衍生的类别。计算频率和交叉表矩阵以研究提供者的社会支持利用情况。

结果

结果表明,大多数初级保健提供者(80%)将社会支持行为融入到镰状细胞贫血携带者结果的传递中,最常采用的社会网络(61.6%)和信息支持(38.4%)行为。提供者较少使用有形援助(8%)、尊重(1.6%)和情感支持(9.6%)行为。

结论

Cutrona 和 Suhr 的分类法可能是评估镰状细胞贫血携带者身份传递过程中支持性沟通的有用工具,并可纳入人口规模的沟通质量保证评估中。

实践意义

初级保健提供者可能需要接受培训,了解如何在传递镰状细胞贫血携带者身份时根据父母的需求调整支持性行为。他们还可能受益于关于如何使用尊重和情感支持的特定培训。

相似文献

1
Use of social support during communication about sickle cell carrier status.使用社会支持进行镰状细胞携带着身份沟通。
Patient Educ Couns. 2012 Aug;88(2):203-8. doi: 10.1016/j.pec.2012.03.018. Epub 2012 May 31.

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