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一项确定Severance临终关怀家庭护理项目有效性的研究

[A study to determine the effectiveness of Severance Hospice Home Care Program].

作者信息

Marian K, Cho W J, Kim C J, Lee W H, Yoo J S

出版信息

Taehan Kanho. 1990 Oct 31;29(4):51-72.

PMID:2266720
Abstract

The purpose of this study was to determine whether Severance Hospice Home Care Program was able to meet its objectives. This was done in order to show in detail the effects of hospice home care on the quality of life of terminally ill patients and to provide rationale for setting up more hospice home care programs in korea. The results of the study were as follows: The subjects of the study were 100 terminally ill patients who had died while in the hospice program and 64 family members who were registered with Severance Hospice Home Care Program between march 1988 and Feb. 1990. The nursing needs of these terminally ill patients were assessed by the nursing records of these patients. The need for pain control (82%) was the highest nursing need so far as the physical aspects were concerned. This was followed by poor appetite (37%), 8 dyspnea (34%), nausea and vomiting (30%) in that order of frequency. In regard to spiritual needs, the need for religious support was also high at 72%. Their main psychological symptoms were anxiety and fear (34%). Burn-out was a major problem for 44% of the family members. The psychological process experienced by the terminal ill patients was compared to the dying process, described by Kübler Ross. In comparison of the five stages outlined by kubler Ross with the dying process of the subjects it was found that the subjects not only experienced the five stages but also experienced denial and doubtfulness or denial with acceptance or acceptance with the expectation of a miracle. But rather than acceptance of the dying process, giving up was a frequent end point of the psychological process, of the subjects. However, when the combination of states was observed, most of the patients reached the state of acceptance in the dying process. It was difficult to identify a definite pattern of change in the psychological process of the subjects. Also it was difficult to identify the factors that influenced the psychological process. The symptoms of the terminally ill subjects just before dying, that is, 3-4 days before dying included apparent signs of dying. These were a reduction of intake (77%), reduction of the amount of urination (63%), increase in sleeping time (64%) and acceptance of dying by patients and their families who had been unaccepting before that time (66%). The primary care givers (family member's) degree of satisfaction with the care given to the patient by the hospice was 88.7%.(ABSTRACT TRUNCATED AT 400 WORDS)

摘要

本研究的目的是确定Severance临终关怀家庭护理项目是否能够实现其目标。这样做是为了详细展示临终关怀家庭护理对绝症患者生活质量的影响,并为在韩国设立更多临终关怀家庭护理项目提供依据。研究结果如下:研究对象为1988年3月至1990年2月期间在临终关怀项目中去世的100名绝症患者以及64名登记参加Severance临终关怀家庭护理项目的家庭成员。通过这些患者的护理记录评估了这些绝症患者的护理需求。就身体方面而言,疼痛控制需求(82%)是最高的护理需求。其次是食欲不振(37%)、呼吸困难(34%)、恶心和呕吐(30%),频率依次递减。在精神需求方面,宗教支持需求也很高,为72%。他们主要的心理症状是焦虑和恐惧(34%)。职业倦怠是44%的家庭成员面临的主要问题。将绝症患者经历的心理过程与库伯勒·罗斯所描述的死亡过程进行了比较。将库伯勒·罗斯概述的五个阶段与研究对象的死亡过程进行比较后发现,研究对象不仅经历了这五个阶段,还经历了否认与怀疑或否认与接受或带着奇迹期望的接受。但放弃而非接受死亡过程是研究对象心理过程常见的终点。然而,观察状态组合时,大多数患者在死亡过程中达到了接受状态。很难确定研究对象心理过程中明确的变化模式。也很难确定影响心理过程的因素。绝症患者临终前,即死亡前3 - 4天的症状包括明显的濒死迹象。这些迹象包括摄入量减少(77%)、尿量减少(63%)、睡眠时间增加(64%)以及患者及其家人此前不接受但此时接受死亡(66%)。初级护理人员(家庭成员)对临终关怀机构给予患者护理的满意度为88.7%。(摘要截取自400字)

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