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[韩国国家临终关怀服务的发展]

[Development in the National Hospice Care Service in Korea].

作者信息

Lee S W, Lee E O, Ahn H S, Heo D S, Kim D S, Kim H S, Lee H J

机构信息

Seoul National University.

出版信息

Taehan Kanho. 1997 Jul-Aug;36(3):49-69.

PMID:9469121
Abstract

The urgent needs to establish hospice care systems in Korea arise from the following reasons: (1) a drastic increase in chronically ill patients with the increase of aged population: (2) rapid changes in living environment from the traditional habitation (e.g., Many Koreans living in apartment complexes, which is the most popular form of modern residence in recent years, prefer to die in the hospital.): the overall increase in patients with advanced cancer: (4) recent trends in early discharge of terminally ill patients from the limited hospital facilities to accommodate other medical insurance beneficiaries: (5) easy acceptance of euthanasia owing to the recent social atmosphere that belittles the dignity of human life: (6) medical and nursing care of AIDS patient in terminal stage: (7) and the problem associated with inhumane medical care system, overtreatment, and groundless fears against narcotics. Terminally ill patients were used to be treated in the hospital in the past. In these days, however, they are forced to have home cares with little assistance from the qualified medical personnel because of insufficient hospital facilities, which are even short for the need of emergency patients and provide priority cares to medical insurance beneficiaries with other acute problems. And yet, neither are there any administrative organizations nor systematic medical studies that deal with the level of terminally ill patient's need, their family's problems and resources of hospice care systems in Korea. Thus, most patients are not able to get appropriate medical care at the terminal stage of their lives. The objective of this study is to make comprehensive database for various hospice care organization currently in operation, link them through medical information system, and develop an easily accessible hospice care model that meets the need of most Korean people. Our survey results may be summarized as follows: Nationally there are 40 organizations that provide partial or full hospice care. However, these organizations are not linked to any formal medical service network. Furthermore, the objective of hospice care, care principles, personnel with appropriate training, educational programs, standard for care, costs, consulting service to patients' family members, the extent of medical care from professional staff members, status of hospice facility, and management of those institutions are neither clearly defined nor organized compared to the international hospice care standards. The surveys on patients of terminal stage, grouped in hospice and non-hospice care patients, reveal what they want visiting nursing care to help their pain control, psychological, social and spiritual demands. While the more than 90% of hospice care patients want to reduce their pains, the non-hospice care patients, in addition to their desire for pain control, demanded more psychological, social and spiritual helps as well. The results of this research could be utilized to (1) define the standard of hospice care, (2) provide the guidance for hospice medical care costs, (3) establish the database of hospice care systems, (4) develop softwares, (5) build communication network through Medinet, and (6) provide an organized visiting home nursing care system. These information should be a valuable resource to many medical staffs who are involved in cancer therapy, nursing care, and social welfare programs.

摘要

在韩国建立临终关怀系统的迫切需求源于以下原因

(1)随着老年人口增加,慢性病患者急剧增多;(2)生活环境从传统居住方式迅速转变(例如,许多居住在公寓楼里的韩国人,公寓楼是近年来最流行的现代居住形式,他们更倾向于在医院去世);晚期癌症患者总体增多;(4)近期绝症患者因医院设施有限而提前出院,以便为其他医疗保险受益人腾出空间的趋势;(5)由于近期轻视人类生命尊严的社会氛围,安乐死容易被接受;(6)艾滋病晚期患者的医疗护理;(7)以及与不人道医疗系统、过度治疗和对麻醉品无端恐惧相关的问题。过去,绝症患者通常在医院接受治疗。然而如今,由于医院设施不足,甚至连急诊患者的需求都无法满足,且优先照顾有其他急性问题的医疗保险受益人,绝症患者在合格医护人员的帮助极少的情况下被迫接受居家护理。而且,韩国既没有任何行政组织,也没有系统的医学研究来处理绝症患者的需求水平、他们家庭的问题以及临终关怀系统的资源。因此,大多数患者在生命末期无法获得适当的医疗护理。本研究的目的是为目前运营的各种临终关怀组织建立综合数据库,通过医疗信息系统将它们连接起来,并开发一个易于获取的临终关怀模式,以满足大多数韩国人的需求。我们的调查结果可总结如下:在全国范围内,有40个组织提供部分或全部临终关怀服务。然而,这些组织并未与任何正式的医疗服务网络相连。此外,与国际临终关怀标准相比,临终关怀的目标、护理原则、经过适当培训的人员、教育项目、护理标准、费用、对患者家属的咨询服务、专业工作人员提供的医疗护理范围、临终关怀设施状况以及这些机构的管理都没有明确界定和组织。对临终患者进行分组调查,分为接受临终关怀和未接受临终关怀的患者,结果显示他们希望获得上门护理以帮助控制疼痛、满足心理、社会和精神需求。虽然超过90%的临终关怀患者希望减轻疼痛,但未接受临终关怀的患者除了希望控制疼痛外,还需要更多的心理、社会和精神帮助。本研究结果可用于:(1)界定临终关怀标准;(2)为临终关怀医疗费用提供指导;(3)建立临终关怀系统数据库;(4)开发软件;(5)通过Medinet建立通信网络;(6)提供有组织的上门居家护理系统。这些信息对于许多参与癌症治疗、护理和社会福利项目的医护人员来说应是宝贵的资源。

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