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银屑病患者的生活状况:羞耻感、愤怒感、担忧感以及日常活动和社会生活问题的发生率。

Living with psoriasis: prevalence of shame, anger, worry, and problems in daily activities and social life.

机构信息

Health Services Research Unit, Istituto Dermopatico dell'Immacolata (IDI), IRCCS, Rome, Italy.

出版信息

Acta Derm Venereol. 2012 May;92(3):299-303. doi: 10.2340/00015555-1273.

Abstract

Psychosocial problems are frequent among patients with psoriasis. The aim of this study was to analyse the prevalence of some specific psychosocial issues. These were evaluated in 936 patients using the emotions and functioning scales of the Skindex-29 questionnaire. The problems most frequently experienced were: shame, anger, worry, difficulties in daily activities and social life. All problems were associated with the severity of psoriasis and with depression or anxiety. Shame, worry and annoyance were more frequent in women than in men, and shame and anger were associated with a low level of education. Impairment in work/hobbies was significantly higher in patients with palmoplantar psoriasis and those with arthro-pathic psoriasis. In conclusion, clinicians could gain important insights about their patients by looking at the single items of a quality of life instrument, to identify patients with high levels of emotional and social problems, in order to improve quality of care.

摘要

银屑病患者常存在心理社会问题。本研究旨在分析一些特定心理社会问题的患病率。采用 Skindex-29 问卷的情绪和功能量表对 936 例患者进行评估。患者最常经历的问题是:羞耻感、愤怒、担忧、日常活动和社会生活困难。所有问题均与银屑病严重程度以及抑郁或焦虑相关。与男性相比,女性更常经历羞耻感、担忧和烦恼,而羞耻感和愤怒与受教育程度低相关。掌跖银屑病和关节病型银屑病患者的工作/爱好受损更显著。总之,通过观察生活质量工具的单项指标,临床医生可以深入了解患者,识别出情绪和社会问题严重的患者,以改善护理质量。

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