Department of Nursing Umeå University, Örnsköldsvik, Sweden.
J Pediatr Nurs. 2012 Aug;27(4):366-74. doi: 10.1016/j.pedn.2011.04.025. Epub 2011 Jun 24.
The purpose of this study was to illuminate the meanings of the lived experience of support for parents of adolescents with heart defects. Narrative interviews were conducted with four mothers and two fathers of adolescents with heart defects. Interviews were interpreted using a phenomenological-hermeneutic method. The interpretation revealed that parents, themselves, attempt to be very supportive. They support their adolescent children, the rest of their families, the staffs of their children's schools, and others around their children. The sense of gratification and contentment that parents receive from fulfilling supportive functions is, in turn, influenced by the support that they, themselves, receive from care providers.
本研究旨在阐明为青少年心脏病患者父母提供支持的生活体验的意义。对 4 名青少年心脏病患者的母亲和 2 名父亲进行了叙事访谈。采用现象学-解释学方法对访谈进行解释。解释表明,父母本身试图给予非常大的支持。他们支持自己的青少年子女、家庭的其他成员、子女学校的工作人员以及子女周围的其他人。父母从履行支持功能中获得的满足感和满足感反过来又受到他们从护理提供者那里获得的支持的影响。