University of Padova, Department of Developmental and Socialization Psychology, Padova, Italy.
Am J Intellect Dev Disabil. 2012 May;117(3):207-24. doi: 10.1352/1944-7558-117.3.207.
The present study analyzes differences in parental stress in families of children with Down, Williams, Fragile X, and Prader-Willi syndromes, exploring factors that influence parental stress, such as child's characteristics, parental locus of control, and family cohesion and adaptability. Differences between mothers and fathers are also investigated. Parents were given self-report questionnaires to assess family stress, parental locus of control, and family cohesion and adaptability. Results showed that stress levels were lower in families of children with Down syndrome and higher in those of children with Prader-Willi syndrome. Children's characteristics and their parents' locus of control were found to be related to family stress levels in all four syndromes, but several aspects specific to a given syndrome also came to light, as well as some shared and some gender-specific features relating to mothers and fathers.
本研究分析了唐氏综合征、威廉姆斯综合征、脆性 X 综合征和普拉德-威利综合征患儿家庭中父母压力的差异，探讨了影响父母压力的因素，如孩子的特点、父母的控制源以及家庭凝聚力和适应性。还研究了母亲和父亲之间的差异。家长们填写了自我报告问卷，以评估家庭压力、父母控制源以及家庭凝聚力和适应性。结果表明，唐氏综合征患儿家庭的压力水平较低，而普拉德-威利综合征患儿家庭的压力水平较高。在这四种综合征中，发现儿童的特点及其父母的控制源与家庭压力水平有关，但也发现了一些与特定综合征有关的特定方面，以及一些与母亲和父亲有关的共同和特定于性别的特征。
