Hallrup Leena Berlin
Author: Leena Berlin Hallrup, RN, Doctoral Student, The School of Health & Caring Sciences, Linnaeus University, Växjö, Sweden.
J Clin Nurs. 2014 Jun;23(11-12):1583-92. doi: 10.1111/j.1365-2702.2012.04208.x. Epub 2012 Jul 5.
This study describes the meaning of the lived experiences of adults with intellectual disabilities in a Swedish institutional care setting.
Despite the general intention of the Swedish law to give care and support for adults with intellectual disabilities in small settings in the community, large institutional care settings exist in Sweden. It is also known that adults with intellectual disabilities have more influence over their care and support when living in small settings than in large institutions. There is a dearth research in regard to studies that focus on how adults with intellectual disabilities experiences their everyday life in such settings.
A qualitative design was used to gain a deeper understanding of the lived experiences of adults with intellectual disabilities in an institutional care setting in Sweden.
Fieldwork from September 2006 to June 2009 in an institutional care setting including participant observation and in-depth interviews with 12 residents was used. Verbatim-transcribed text was analysed using a phenomenological reflective lifeworld approach.
The essential picture of the phenomenon was experienced 'as a meaningful and meaningless existence' and was reflected in residents' descriptions of their everyday life in the setting. It was characterised by the constituents: ambiguous dependency, social interactions and everyday life in a restricted area.
The results reveal the importance of paying close attention to what adults with intellectual disabilities have to say about their everyday life when living in an institutional care setting. For caring practices of people with intellectual disabilities, it is scarcely satisfactory that residents experience an ambivalent dependency and of having to live in a restricted area.
The results of this study contribute to better insight and deeper knowledge of the lived experiences of adults with intellectual disabilities, enabling the staff and management to further enhance the well-being for residents. In addition, the findings provide feedback to staff, managers and researchers working in the intellectual disabilities field.
本研究描述了瑞典机构照料环境中成年智障人士的生活经历的意义。
尽管瑞典法律总体上旨在为社区小规模环境中的成年智障人士提供照料和支持，但瑞典仍存在大型机构照料环境。此外，众所周知，成年智障人士在小规模环境中生活时比在大型机构中对其照料和支持有更大的影响力。关于专注于成年智障人士在这种环境中如何体验其日常生活的研究匮乏。
采用质性设计以更深入地了解瑞典机构照料环境中成年智障人士的生活经历。
2006年9月至2009年6月在一个机构照料环境中进行实地调查，包括参与观察和对12名居民进行深入访谈。使用现象学反思生活世界方法对逐字转录的文本进行分析。
该现象的基本情况被体验为“有意义和无意义的存在”，并体现在居民对其在该环境中日常生活的描述中。其特征包括：模糊的依赖、社交互动以及受限区域内的日常生活。
结果揭示了在机构照料环境中生活时密切关注成年智障人士对其日常生活的看法的重要性。对于智障人士的照料实践而言，居民体验到矛盾的依赖以及不得不生活在受限区域，这几乎不能令人满意。
本研究结果有助于更好地洞察和深入了解成年智障人士的生活经历，使工作人员和管理人员能够进一步提高居民的福祉。此外，研究结果为智障领域的工作人员、管理人员和研究人员提供了反馈。
