Toronto Health Economics and Technology Assessment Collaborative, Leslie Dan Pharmacy Building, University of Toronto, 6th Floor, Room 651, 144 College Street, Toronto, Ontario M5S 3M2, Canada.
J Telemed Telecare. 2012 Jul;18(5):297-300. doi: 10.1258/jtt.2012.111201. Epub 2012 Jul 11.
We conducted a mixed-methods case study to explore the perceptions of family caregivers and palliative cancer patients of home telehealth, and their experience with it. The intervention in the randomized controlled trial from which study participants were selected consisted of specialist nurses available 24 hours per day who communicated with patients and families using videophones, with optional remote monitoring. Qualitative data were collected from interviews with five patient/caregiver dyads and seven bereaved family caregivers, direct observation and nursing documentation. Quantitative data were collected from computerized nursing documentation and analyzed for patterns of use. During the study there were 255 contacts, including videophone, telephone or face-to-face visits, between tele-nurses and families. Overall the patients, family caregivers and tele-nurses felt that home telehealth enabled family caregiving, citing increased access to care, and patient and family caregiver reassurance. Pain management was the most common reason for initiating contact with the nurse, followed by emotional support. Concerns included lack of integration of services, inappropriate timing of the intervention and technical problems. The case study confirmed the importance of timely and accessible care for a group of clinically vulnerable, dying cancer patients and their family caregivers.
我们进行了一项混合方法的案例研究,以探讨家庭护理者和姑息治疗癌症患者对家庭远程医疗的看法及其体验。该研究参与者所选自的随机对照试验中的干预措施包括 24 小时提供服务的专科护士,他们通过可视电话与患者和家庭进行沟通,并可选择远程监测。定性数据来自于对 5 对患者/护理者二人组和 7 名丧亲家庭护理者的访谈、直接观察和护理记录。定量数据来自计算机化的护理记录,并对使用模式进行分析。在研究期间,远程护士与家庭之间共进行了 255 次联系,包括可视电话、电话或面对面访问。总体而言,患者、家庭护理者和远程护士都认为家庭远程医疗使家庭护理成为可能,他们表示这增加了获得护理的机会,并让患者和家庭护理者感到安心。发起与护士联系的最常见原因是疼痛管理,其次是情感支持。关注的问题包括服务整合不足、干预时间不当和技术问题。该案例研究证实了为一组临床脆弱、临终癌症患者及其家庭护理者提供及时和可及的护理的重要性。