• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利：CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法，用中文像聊天一样搜索，搜遍4000万医学文献。AI智能推荐，让科研检索更轻松。

立即免费搜索

文件翻译

保留排版，准确专业，支持PDF/Word/PPT等文件格式，支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述，25分钟生成高质量综述，智能提取关键信息，辅助科研写作。

立即免费体验

相似文献

1
Case study: ethical guidance for pediatric e-health research using examples from pain research with adolescents.案例研究：以青少年疼痛研究为例的儿科电子健康研究中的伦理指导。
J Pediatr Psychol. 2012 Nov-Dec;37(10):1116-26. doi: 10.1093/jpepsy/jss085. Epub 2012 Jul 31.
2
Ethical guidance for conducting health research with online communities: A scoping review of existing guidance.在线社区中开展健康研究的伦理指导：现有指导意见的范围综述。
PLoS One. 2024 May 17;19(5):e0302924. doi: 10.1371/journal.pone.0302924. eCollection 2024.
3
Ethical issues in using the internet to engage participants in family and child research: A scoping review.利用互联网吸引家庭和儿童研究参与者的伦理问题：范围综述。
PLoS One. 2018 Sep 27;13(9):e0204572. doi: 10.1371/journal.pone.0204572. eCollection 2018.
4
Reporting ethical processes in two Indian journals.两份印度期刊中的伦理流程报告。
Indian J Med Sci. 2008 Apr;62(4):134-40.
5
Psychological therapies (remotely delivered) for the management of chronic and recurrent pain in children and adolescents.用于治疗儿童和青少年慢性复发性疼痛的心理疗法（远程提供）
Cochrane Database Syst Rev. 2015 Mar 23;3(3):CD011118. doi: 10.1002/14651858.CD011118.pub2.
6
Ethical aspects of clinical research with minors.未成年人临床研究的伦理问题。
Eur J Pediatr. 2013 Jul;172(7):859-66. doi: 10.1007/s00431-012-1856-8. Epub 2012 Oct 17.
7
Realising the technological promise of smartphones in addiction research and treatment: An ethical review.实现智能手机在成瘾研究与治疗中的技术潜力：一项伦理审查。
Int J Drug Policy. 2016 Oct;36:47-57. doi: 10.1016/j.drugpo.2016.05.013. Epub 2016 Jun 1.
8
[Consent in children: Practical situations (part 2)].[儿童同意书：实际情况（第二部分）]
Arch Pediatr. 2015 Sep;22(9):989-95. doi: 10.1016/j.arcped.2015.06.010. Epub 2015 Jul 27.
9
Ethical issues in health research with novel online sources.利用新型在线资源进行健康研究中的伦理问题。
Am J Public Health. 2012 Dec;102(12):2225-30. doi: 10.2105/AJPH.2012.300813. Epub 2012 Oct 18.
10
Internet research: an opportunity to revisit classic ethical problems in behavioral research.网络研究：重新审视行为研究中经典伦理问题的契机。
Ethics Behav. 2003;13(1):45-60. doi: 10.1207/S15327019EB1301_08.

引用本文的文献

1
Framework and Practical Guidance for the Ethical Use of Electronic Methods for Communication With Participants in Medical Research.电子通讯在医学研究中使用的伦理框架和实用指南
J Med Internet Res. 2022 Apr 20;24(4):e33167. doi: 10.2196/33167.
2
Core components and strategies for suicide and risk management protocols in mental health research: a scoping review.精神健康研究中自杀和风险管理协议的核心组成部分和策略：范围综述。
BMC Psychiatry. 2021 Jan 7;21(1):13. doi: 10.1186/s12888-020-03005-0.
3
Exploring the ethical issues in research using digital data collection strategies with minors: A scoping review.探索使用未成年人数字数据收集策略进行研究中的伦理问题：范围综述。
PLoS One. 2020 Aug 27;15(8):e0237875. doi: 10.1371/journal.pone.0237875. eCollection 2020.
4
Social Media Content About Children's Pain and Sleep: Content and Network Analysis.关于儿童疼痛与睡眠的社交媒体内容：内容与网络分析
JMIR Pediatr Parent. 2018 Dec 11;1(2):e11193. doi: 10.2196/11193.
5
Ethical issues in using the internet to engage participants in family and child research: A scoping review.利用互联网吸引家庭和儿童研究参与者的伦理问题：范围综述。
PLoS One. 2018 Sep 27;13(9):e0204572. doi: 10.1371/journal.pone.0204572. eCollection 2018.
6
The Integration of Technology into Treatment Programs to Aid in the Reduction of Chronic Pain.将技术融入治疗方案以帮助减轻慢性疼痛。
J Pain Manag Med. 2016;2(3). Epub 2016 Dec 31.
7
Commentary: pediatric eHealth interventions: common challenges during development, implementation, and dissemination.评论：儿科电子健康干预措施：开发、实施和传播过程中的常见挑战
J Pediatr Psychol. 2014 Jul;39(6):612-23. doi: 10.1093/jpepsy/jsu022. Epub 2014 May 10.
8
Bringing psychosocial support to headache sufferers using information and communication technology: lessons learned from asking potential users what they want.利用信息通信技术为头痛患者提供心理社会支持：从询问潜在用户需求中获得的经验教训。
Pain Res Manag. 2014 Jan-Feb;19(1):e1-8. doi: 10.1155/2014/631638.

本文引用的文献

1
Internet sites offering adolescents help with headache, abdominal pain, and dysmenorrhoea: a description of content, quality, and peer interactions.提供青少年头痛、腹痛和痛经帮助的互联网网站：内容、质量和同伴互动描述。
J Pediatr Psychol. 2012 Apr;37(3):262-71. doi: 10.1093/jpepsy/jsr100. Epub 2011 Dec 12.
2
Ethics, law and paediatric medicine.伦理学、法律与儿科学
J Paediatr Child Health. 2011 Sep;47(9):620-3. doi: 10.1111/j.1440-1754.2011.02167.x.
3
Ethical practice in internet research involving vulnerable people: lessons from a self-harm discussion forum study (SharpTalk).互联网研究中涉及弱势群体的伦理实践：来自自伤讨论论坛研究（SharpTalk）的教训。
J Med Ethics. 2011 Dec;37(12):752-8. doi: 10.1136/medethics-2011-100080. Epub 2011 Sep 24.
4
Smartphone applications for pain management.智能手机应用程序在疼痛管理中的应用。
J Telemed Telecare. 2011;17(6):308-12. doi: 10.1258/jtt.2011.101102. Epub 2011 Aug 15.
5
Where do youth learn about suicides on the Internet, and what influence does this have on suicidal ideation?年轻人在哪里了解互联网上的自杀信息，这对自杀意念有什么影响？
J Child Psychol Psychiatry. 2011 Oct;52(10):1073-80. doi: 10.1111/j.1469-7610.2011.02416.x. Epub 2011 Jun 10.
6
Health Web sites for teens.
J Pediatr Health Care. 2011 Mar-Apr;25(2):e1-5. doi: 10.1016/j.pedhc.2010.11.005.
7
Randomized controlled trial of an Internet-delivered family cognitive-behavioral therapy intervention for children and adolescents with chronic pain.针对患有慢性疼痛的儿童和青少年的互联网家庭认知行为疗法干预的随机对照试验。
Pain. 2009 Nov;146(1-2):205-13. doi: 10.1016/j.pain.2009.07.034. Epub 2009 Aug 19.
8
A systematic review of internet-based self-management interventions for youth with health conditions.对患有健康问题的青少年基于互联网的自我管理干预措施的系统评价。
J Pediatr Psychol. 2009 Jun;34(5):495-510. doi: 10.1093/jpepsy/jsn115. Epub 2008 Nov 23.
9
Self-reported differences in empowerment between lurkers and posters in online patient support groups.在线患者支持小组中潜水者和发帖者自我报告的赋权差异。
J Med Internet Res. 2008 Jun 30;10(2):e18. doi: 10.2196/jmir.992.
10
Doing synchronous online focus groups with young people: methodological reflections.与年轻人进行同步在线焦点小组讨论：方法学思考
Qual Health Res. 2007 Apr;17(4):539-47. doi: 10.1177/1049732306298754.

案例研究：以青少年疼痛研究为例的儿科电子健康研究中的伦理指导。

Case study: ethical guidance for pediatric e-health research using examples from pain research with adolescents.

机构信息

Centre for Pain Research, The University of Bath, Bath, BA2 7AY, UK.

出版信息

J Pediatr Psychol. 2012 Nov-Dec;37(10):1116-26. doi: 10.1093/jpepsy/jss085. Epub 2012 Jul 31.

DOI:10.1093/jpepsy/jss085
PMID:22851643
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3529561/
Abstract

OBJECTIVE

The Internet is a frequently used platform for research in pediatric and health psychology. However, there is little pragmatic guidance as to ethical best practice of this research. The absence of guidance is particularly prominent for online research with children. Our objective is to outline ethical issues in e-health research with children and adolescents using two exemplar studies in pediatric pain research.

METHODS

The first study is an asynchronous message board discussion amongst teenagers with pain who are frequent internet users.The second study is a web-based behavioral intervention for the management of adolescent pain.

RESULTS

Each exemplar study is discussed in the context of specific ethical considerations related to recruitment, informed consent and debriefing, privacy and confidentiality, and participant safety. Ethical issues regarding the evaluation of online psychological interventions are also discussed.

CONCLUSIONS

Guidance on optimal ethical practice in e-health research is summarized.

摘要

目的

互联网是儿科和健康心理学研究常用的平台。然而，对于这种研究的伦理最佳实践，几乎没有实用的指导。对于儿童的在线研究，这种指导的缺乏尤为突出。我们的目标是通过两个儿科疼痛研究的范例研究来概述电子健康研究中涉及儿童和青少年的伦理问题。

方法

第一项研究是在经常上网的青少年疼痛患者中进行的异步留言板讨论。第二项研究是针对青少年疼痛的基于网络的行为干预。

结果

在讨论具体的伦理问题时，分别对这两个范例研究进行了讨论，这些伦理问题涉及招募、知情同意和事后解释、隐私和保密性以及参与者安全。还讨论了关于在线心理干预评估的伦理问题。

结论

总结了电子健康研究中最佳伦理实践的指导。