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获取澳大利亚的捐赠受孕信息:呼吁进行追溯性获取。

Accessing donor conception information in Australia: a call for retrospective access.

作者信息

Adams Damian, Lorbach Caroline

机构信息

Department of Nursing and Midwifery, Flinders University, Bedford Park, SA 5042, Australia.

出版信息

J Law Med. 2012 Jun;19(4):707-21.

PMID:22908615
Abstract

Donor conception practices in Australia have left thousands of donor-conceived people, their families and gamete donors bereft of information. The lack of a nationally timeline-consistent approach to information access has driven these people to seek support and information from self-help groups, online communities and even their own DNA. This article examines the historical perspective of information access and how progress is being made through lobbying and public awareness. To determine the current status of information availability, fertility clinics around Australia were surveyed. It is argued that current practices continue to fail donor-conceived people, their families and gamete donors, and that until all donor offspring are afforded the right to know their genetic family history, they will continue to suffer discrimination, and potentially risk psychological and physical trauma.

摘要

澳大利亚的捐赠受孕做法使成千上万通过捐赠受孕的人、他们的家人以及配子捐赠者失去了信息。在获取信息方面缺乏全国性的、时间线一致的方法,促使这些人从自助团体、在线社区甚至他们自己的DNA中寻求支持和信息。本文审视了获取信息的历史视角,以及通过游说和提高公众意识所取得的进展。为了确定信息可获取的现状,对澳大利亚各地的生育诊所进行了调查。有人认为,目前的做法继续让通过捐赠受孕的人、他们的家人以及配子捐赠者失望,而且在所有捐赠后代都被赋予了解其遗传家族史的权利之前,但他们将继续遭受歧视,并可能面临心理和身体创伤的风险。

相似文献

1
Accessing donor conception information in Australia: a call for retrospective access.获取澳大利亚的捐赠受孕信息:呼吁进行追溯性获取。
J Law Med. 2012 Jun;19(4):707-21.
2
Information rights and donor conception: lessons from adoption?信息权与捐赠受孕:领养带来的启示?
J Law Med. 2012 Jun;19(4):722-41.
3
Donor-conceived individuals and access to information about their genetic origins: the relevance and role of rights.通过捐赠受孕出生的个体及其获取有关其遗传起源信息的权利:权利的相关性和作用。
J Law Med. 2012 Jun;19(4):742-57.
4
Donor conception legislation in Victoria, Australia: the "Time to Tell" campaign, donor-linking and implications for clinical practice.澳大利亚维多利亚州的供体受孕立法:“是时候告知了”运动、供体联系及其对临床实践的影响。
J Law Med. 2012 Jun;19(4):803-19.
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Keeping mum about dad: "contracts" to protect gamete donor anonymity.对父亲守口如瓶:保护配子捐赠者匿名性的“契约”
J Law Med. 2012 Jun;19(4):758-68.
6
Psycho-social, ethical and legal arguments for and against the retrospective release of information about donors to donor-conceived individuals in Australia.关于在澳大利亚支持和反对向通过捐赠受孕出生的个人追溯披露捐赠者信息的社会心理、伦理和法律论据。
J Law Med. 2011 Dec;19(2):354-76.
7
Time for a national approach to donor conception in Australia.澳大利亚需要采取全国性的捐赠受孕方法了。
J Law Med. 2011 Sep;19(1):7-12.
8
Legal parent versus biological parent: the impact of disclosure.法定父母与生物学父母:信息披露的影响。
J Law Med. 2012 Jun;19(4):790-802.
9
Proposed legislative change mandating retrospective release of identifying information: consultation with donors and Government response.拟议的立法变更要求追溯性披露身份识别信息:与捐赠者的磋商及政府回应
Hum Reprod. 2014 Feb;29(2):286-92. doi: 10.1093/humrep/det434. Epub 2013 Dec 6.
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The rights of donor inseminated children to know their genetic origins in Australia.在澳大利亚,通过捐赠精子受孕出生的孩子了解其遗传起源的权利。
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引用本文的文献

1
Embodied sociotechnical imaginaries: how donor-conceived people imagine identity, family and reprodigital futures beyond regulation.具身化的社会技术想象:捐赠受孕者如何超越规范去想象身份、家庭和生殖数字未来。
Front Glob Womens Health. 2024 Jan 11;4:1221913. doi: 10.3389/fgwh.2023.1221913. eCollection 2023.
2
Emerging models for facilitating contact between people genetically related through donor conception: a preliminary analysis and discussion.促进通过捐赠受孕而有血缘关系的人之间接触的新模型:初步分析与讨论
Reprod Biomed Soc Online. 2015 Nov 10;1(2):71-80. doi: 10.1016/j.rbms.2015.10.001. eCollection 2015 Dec.
3
Gamete donors' expectations and experiences of contact with their donor offspring.
配子捐赠者对与他们的捐赠后代接触的期望和经历。
Hum Reprod. 2014 Apr;29(4):731-8. doi: 10.1093/humrep/deu027. Epub 2014 Feb 18.
4
Conceptualising a child-centric paradigm : do we have freedom of choice in donor conception reproduction?概念化以儿童为中心的范式:在供体受孕生殖中,我们是否有选择的自由?
J Bioeth Inq. 2013 Oct;10(3):369-81. doi: 10.1007/s11673-013-9454-7. Epub 2013 Jun 19.