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短健康量表:一种在讲英语的炎症性肠病患者中测量健康相关生活质量的有效且可靠的方法。

The Short Health Scale: a valid and reliable measure of health related quality of life in English speaking inflammatory bowel disease patients.

机构信息

Centre for Colorectal Disease, St Vincent's University Hospital/University College Dublin, Elm Park, Dublin 4, Ireland.

出版信息

J Crohns Colitis. 2013 Sep;7(8):616-21. doi: 10.1016/j.crohns.2012.07.030. Epub 2012 Aug 21.

Abstract

BACKGROUND

Health related quality of life in inflammatory bowel disease is influenced both by disease activity as well as by the psychosocial characteristics of the individual patient. The Short Health Scale (SHS) is a four-part visual analogue scale questionnaire using open-ended questions that are designed to assess the impact of inflammatory bowel disease on a health related quality of life. The four dimensions include bowel symptoms, activities of daily life, worry and general wellbeing. It has previously been validated in Swedish and Norwegian speaking patients.

AIM

To evaluate the SHS in an English speaking inflammatory bowel disease population.

METHODS

Four hundred and ninety Crohn's disease and ulcerative colitis patients completed the SHS. Individual SHS items were correlated with Inflammatory Bowel Disease Questionnaire (IBDQ) dimensions and with disease activity to assess validity. Test-retest reliability was assessed in 38 patients who completed the Short Health Scale two weeks apart.

RESULTS

All four items correlated with corresponding IBDQ dimensions with correlation coefficients ranging from -0.66 to -0.74 (all p values<0.001). In addition, total SHS scores correlated with total IBDQ scores in both Crohn's disease (-0.836) and ulcerative colitis (0.797). There was a stepwise increase in Short Health Scale scores with increasing disease activity (all p values<0.001). Reliability was confirmed with test-retest correlations ranging from 0.70 to 0.89 (all p values<0.005).

CONCLUSIONS

The Short Health Scale is a valid and reliable measure of health related quality of life in English speaking inflammatory bowel disease patients.

摘要

背景

炎症性肠病患者的健康相关生活质量不仅受到疾病活动度的影响,还受到个体患者的心理社会特征的影响。短健康量表(SHS)是一个四部分的视觉模拟量表问卷,使用开放式问题,旨在评估炎症性肠病对健康相关生活质量的影响。四个维度包括肠症状、日常生活活动、担忧和一般健康状况。它之前已经在瑞典语和挪威语患者中得到验证。

目的

评估 SHS 在英语炎症性肠病人群中的应用。

方法

490 例克罗恩病和溃疡性结肠炎患者完成了 SHS。个别 SHS 项目与炎症性肠病问卷(IBDQ)维度和疾病活动度相关,以评估其有效性。38 例患者在两周后完成了短健康量表的重测,以评估重测信度。

结果

所有四个项目均与相应的 IBDQ 维度相关,相关系数范围为-0.66 至-0.74(所有 p 值均<0.001)。此外,在克罗恩病(-0.836)和溃疡性结肠炎(0.797)中,总 SHS 评分与总 IBDQ 评分均相关。随着疾病活动度的增加,短健康量表评分逐渐增加(所有 p 值均<0.001)。重测信度得到了确认,相关系数范围为 0.70 至 0.89(所有 p 值均<0.005)。

结论

短健康量表是一种有效且可靠的测量英语炎症性肠病患者健康相关生活质量的工具。

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