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着迷与孤立:阿斯伯格综合征成人异常感官体验的扎根理论研究。

Fascination and isolation: a grounded theory exploration of unusual sensory experiences in adults with Asperger syndrome.

机构信息

Sheffield Health and Social Care NHS Foundation Trust, St Georges Community Hospital, Winter Street, Sheffield, South Yorkshire, S3 7ND, UK.

出版信息

J Autism Dev Disord. 2013 Apr;43(4):891-910. doi: 10.1007/s10803-012-1633-6.

DOI:10.1007/s10803-012-1633-6
PMID:22923038
Abstract

Unusual sensory experiences are commonly seen in people with Asperger syndrome (AS). They correlate with functional impairments and cause distress. The current study investigates how these experiences have affected nine adults with AS's lives, as well as the coping strategies utilised. Semi-structured interviews were conducted using Instant Messaging software. Data were analysed using Grounded Theory. A number of inter-related categories and focused codes were identified. The categories included heightened senses, sensory stress, the stress avalanche, moderating factors, coping strategies, other people, self-acceptance, fascination, and isolation. A model was constructed as to how these categories and codes interact. How these findings link with previous research into autism spectrum disorders is discussed. Implications for services and future research are also made.

摘要

孤独症谱系障碍(AS)患者常伴有异常的感觉体验。这些体验与功能损伤相关,并导致其痛苦。本研究旨在调查这些感觉体验如何影响 9 名孤独症谱系障碍患者的生活,并探讨他们所采用的应对策略。研究采用即时通讯软件对患者进行半结构式访谈,并运用扎根理论对访谈内容进行分析。研究确定了一系列相互关联的类别和聚焦编码。这些类别包括:敏感增强、感官压力、压力雪崩、调节因素、应对策略、他人、自我接纳、着迷和孤立。构建了一个模型以展示这些类别和编码是如何相互作用的。还讨论了这些发现与之前自闭症谱系障碍研究的联系。最后,对服务和未来研究提出了一些建议。

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Epidemiology of autism spectrum disorders in adults in the community in England.英格兰社区中成年人自闭症谱系障碍的流行病学情况。
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Aggression in low functioning children and adolescents with autistic disorder.
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