Department of Public Health, Erasmus MC University Medical Center, Rotterdam, The Netherlands.
Patient Educ Couns. 2012 Nov;89(2):353-9. doi: 10.1016/j.pec.2012.08.003. Epub 2012 Sep 7.
To determine the level of informed choice in women invited for breast cancer screening for the first time.
To determine the content of decision-relevant knowledge, 16 experts were asked to judge whether each of 51 topics represented essential information to enable informed choices. To assess the level of informed choices, a questionnaire was then sent to all 460 invited women in the south-western part of the Netherlands who turned 50 in August 2008.
Of all 229 respondents, 95% were deemed to have sufficient knowledge as they answered at least 8 out of 13 items correctly. In 90% there was consistency between intention (not) to participate and attitude. As a result, 88% made an informed choice. Sixty-eight percent of women responded correctly on the item of over-diagnosis. Even if all non-respondents were assumed to have no knowledge, 50% of the total group invited to participate still had sufficient knowledge.
Women were deemed to have sufficient relevant knowledge of the benefits and harms if they answered at least half of the items correctly.
To further increase informed choices in breast cancer screening, information on some of the possible harms merits further attention.
确定首次参加乳腺癌筛查的女性的知情选择水平。
为了确定决策相关知识的内容，我们请 16 位专家判断 51 个主题中的每一个主题是否代表使知情选择成为可能的基本信息。然后，为了评估知情选择的水平，我们向 2008 年 8 月年满 50 岁的荷兰西南部所有 460 名受邀女性发送了一份问卷。
在所有 229 名受访者中，95%的人被认为具有足够的知识，因为他们至少答对了 13 个项目中的 8 个。90%的人在意图（不）参与和态度之间存在一致性。因此，88%的人做出了知情选择。68%的女性正确回答了过度诊断项目。即使所有未回复者都被假定没有知识，那么受邀参加的总人数的 50%仍然具有足够的知识。
如果女性至少答对了一半的问题，就被认为对收益和风险有足够的相关知识。
为了进一步提高乳腺癌筛查的知情选择，一些可能的危害信息值得进一步关注。
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