Governor Kremers Centre, Maastricht University Medical Centre, Maastricht, the Netherlands Vilans, Utrecht, the Netherlands.
J Intellect Disabil Res. 2013 Nov;57(11):1027-36. doi: 10.1111/j.1365-2788.2012.01598.x. Epub 2012 Sep 14.
According to Dutch jurisdiction, individual support plans (ISP) should register the mutual agreements between a person with intellectual disabilities (ID) and a professional service organisation with respect to the support that will be provided. In planning for support, active involvement of both parties is necessary. The current study focuses on the perceptions and experiences of Dutch persons with ID with respect to their involvement in their ISP.
Data were gathered through semi-structured interviews with 61 people with mild to moderate ID. Participants were recruited in 23 Dutch service provider organisations. A systematic qualitative analysis was performed on the interview transcripts.
Although persons with ID are present at their ISP meeting, active client involvement in developing, executing and evaluating the ISP is not common practice. Issues of accessibility and lack of control over the process and content of ISP hamper effective involvement of people with ID.
The study raises questions concerning ISP practices in the Netherlands. The question needs to be addressed as to how to facilitate active involvement of people with ID in planning for support. The results further suggest that support organisations perceive an ISP rather as a formal document to comply with bureaucratic rules than as an instrument of empowerment to enhance control of persons with ID over their own lives.
根据荷兰的司法管辖，个人支持计划（ISP）应记录智力障碍者（ID）与专业服务组织之间关于将要提供的支持的共同协议。在支持规划中，双方的积极参与是必要的。本研究关注的是荷兰 ID 者对其参与 ISP 的看法和经验。
通过对 61 名轻度至中度 ID 者的半结构化访谈收集数据。参与者是在 23 个荷兰服务提供商组织中招募的。对访谈记录进行了系统的定性分析。
尽管 ID 者出席了他们的 ISP 会议，但他们积极参与制定、执行和评估 ISP 的情况并不常见。可及性问题以及对 ISP 过程和内容缺乏控制，阻碍了 ID 者的有效参与。
本研究对荷兰 ISP 实践提出了质疑。需要解决的问题是如何促进 ID 者积极参与支持计划。研究结果还表明，支持组织将 ISP 视为遵守官僚规则的正式文件，而不是增强 ID 者对自己生活的控制的授权工具。
